As we all know, many illnesses that have inflammatory aspects are often rollercoaster rides.
We can wake up one morning and feel horrendous, requiring to crawl to the washroom, unable to stand or even sit up straight, vomiting at every turn, and hoping that lying in bed all day will dull the pain. Then, an hour later, the pain has subsided, the nausea has almost disappeared, and have a sudden burst of energy.
Every hour is a question mark. Hell, every minute is a question mark. Sudden internal muscle cramps or inflammatory fits come out of nowhere. We can feel decent one minute and we can hit the floor the next. It is an entire guessing game. The pain persists, but at varying levels. The inflammation continues, but hits at random moments. Sometimes it is constant, but many times it is intermittent.
The Lighter Side of rollercoaster illnesses is that you learn to take the good moments for exactly what they are: random and temporary, but they still exist and they are GLORIOUS.
That means that the image remains difficult to understand. If I feel awful in the morning, cancel plans, and then feel decent a few hours later, I may try to re-make plans or I may do something else. No matter how I decide to use that time, you better believe I am going to use that time. It may not always seem appropriate, it may even appear contradictory, but it is what it is.
SO many people with chronic illness have more bad days than good. Not always, but at some point, the bad days are far more frequent than the good or even somewhat decent. We learn to take advantage of those moments, no matter how often or how infrequent they become.
Use those days.
Remember that you may not always maintain those good or decent moments.
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