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Saturday, 7 April 2018

Wrong Food

What it feels like:
I swallowed a double-edged sword. Every 30 seconds or less, with each movement of peristalsis, this sword is ripping me apart from the inside as it moves through my intestine.

What's actually happening:
I ate a couple bites of bread that had pumpkin seeds in it and my inflamed intestines are desperately trying to expel it through my system.

A few seeds.
That's all it takes.

So, while I was stuck on the throne, uncontrollably bawling my eyes out with every cramp, I was trying to use the 'labour breathing' techniques to get through it. Is this what labour feels like near the end?? A full 10/10 pain every 10-30 seconds... trying to expel whatever it is that is stuck... except I don't get this adorable infant afterwards.
Now let me mention something here - as chronic patients we rarely, if ever, admit to 10/10 pain. We always know that things could get worse. 10/10 is reserved for the 'worst pain imaginable'. Today I reached that. The worst pain imaginable - that I have felt. I still don't know how I put up with this pain on a daily basis all throughout high school. I think I was a lot tougher back then.

So I made a deal with myself. (I always make these deals with myself).

1. If, after 2 hours, it had not improved or settled down, I would be calling 911 for an ambulance. (10/10 pain warrants this. It could be a reaction, a blockage, or something else that might require a scope or just fluids to help expel it).

2. If there was a lot of blood, I would also call 911, for similar reasons.

Luckily, with my prescribed medication, and the fact that my digestion has been very quick as of late, the 10/10 cramping pain lasted just under 2 hours.
So that's 240+ moments of absolute hellish agony beyond comprehension, but then it settled. It dropped to 8/10 pain every five minutes or so. Then 7/10 pain at 10-15 minute intervals.
Now, an hour and a half later, the pain is at 5/10, but constant, with small upticks of cramping pain every few minutes, only reaching 7/10.
I am through the worst of it.

I am exhausted. My tank top is damp from sweating and from bouts of chills and sweats, my body aches from the rigidness that occurred with every cramp and ache, and I look like I have an alien tummy. It is concave and I look like I have lost 10 pounds over the course of the afternoon. My head hurts, my body aches, and I feel like I have run a marathon - but the worst is over.

This happened because I am off of my antibiotics. I am not taking my antibiotics or my Methotrexate. Both of those things were keeping my Crohn's and Pouchitis quasi-stable. I didn't have to worry about a few seeds here and there.
But I have to be off of these medications to get these cortisone injections... which could help the pain in my SI joints.
It also could be the Cosentyx, since it has a tendency to worsen IBD illnesses.

Sacrifice one illness to help another... Sacrifice some symptoms to improve others.

The hope is that the cortisone injections will work for several months. So, once the second injection is done, I can go back on my antibiotics and on methotrexate, which will improve my IBD symptoms again. So, some suffering for approximately three weeks is in hopes that I will suffer less from Ankylosing Spondylitis for several months.

Back on full fluids (since I am pretty scared to eat right now), and wait another week until I can go back on my meds.
If it continued to worsen, I will get a hold of my GI guy and find out if there is something else I should be doing.

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