Search This Blog

Wednesday, 15 May 2019

Patient Zero

For all of my fellow spoonies out there:

Do you have multiple autoimmune and/or inflammatory conditions that seem simultaneously connected AND disconnected?

It seems common that, if you suffer from one kind of autoimmune disorder, you wind up developing several other autoimmune disorders.
Not contracting them.
Not spreading of a disorder into other organs.
Developing them. As though they have always existed beneath the surface, just waiting for an ideal set of circumstances to bubble up to the surface.

Sometimes I feel like there are too many things going on - too many conditions within systems that do not seem to be connected to other systems - for it not to stem from one concrete diagnosis.

Every once in a while I have this daydreaming vision of walking into an auditorium packed full with medical residents. I speak about my diagnosed illnesses, my history with inflammation, pain, surgeries, therapies, and medications.
Then I put forward an .... opportunity.
An opportunity for students to decipher the goings on in my body. Somehow, I would love for a medical student to figure out an underlying root cause.
A genetic mutation.
An undeveloped or improperly developed immune system (and where it went wrong).

Sometimes I wonder if my only 'legacy' could be - maybe, perhaps - the discovery of a new illness that results in everything that I have.

But what doctor wants to spend his/her entire career on one patient? One patient with no deformities or medical marvels (that we know of), nothing seemingly of consequence, just a list of illnesses and allergies that do not always make sense....

I came close once.
I had a physician (who mostly helped get me from one level of care to the next) who was so enthralled with my case that he spent hours searching through nearly my entire medical history! Again, it is not like what I am dealing with is particularly special or odd, just that there is a possibility of something specific going on beneath all of these illnesses.

How many of you believe that there is a root problem that has yet to be discovered or realized?

No comments:

Post a Comment