I've always been a big fan of rollercoaster rides. The biggest and fastest with lots of loop-de-loops. I mean, the ones at the parks..…
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Do you ever ask someone with chronic illness how a month or a season has been, they respond by saying it was super busy or they were swampe…
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One thing I used to say, and a phrase I hear often from many individuals with chronic illness, is "I don't let my illness slow me …
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I believe that one of the most profound elements of growing up is realizing just how ridiculous the beliefs and judgements were that we hel…
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We, the collective 'we' of Spoonie-dom, speak a lot about Invisible Disease; the illnesses that cannot be perceived by a cursory g…
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Here is the rundown and update as of Feb 2025. I am currently 38 years old, turning 39 this August. Diagnoses & Chronic Conditions: …
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I would say that a good 90% of daily living wiith chronic illness is just unwillingly cataloguing all types of symptoms and sensations from…
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I got to see the ENT last week!! It's been a long wait from my first symptoms to seeing this specialized ENT surgeon, so I was very mu…
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Ever wonder why some flare-ups are worse than others, or why something that usually doesn't cause a flare-up suddenly does, out of nowh…
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It's been two weeks with my new hearing aid for my left ear. I have moderate to moderately severe hearing loss in my left ear, presume…
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I mean, I would like to think that it's common knowledge that living with chronic illness is difficult. But is it just something we kno…
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Diagnostic years are absolutely exhausting! A diagnostic year is when new symptoms pop up, or a change is made, which begins a cascading e…
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With my eyes, I am finding it too bothersome to drive at night right now. I have astigmatism in both eyes, plus the vision changes from the…
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Alright - some good-ish news. I had my pouchoscopy today - to look in my internal J-Pouch, check on the Crohn's, and try to figure out…
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I've got a pouchoscopy in the morning (scope of my internal J Pouch), so today I am prepping for it. This means fluids all day (full fl…
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Listen, 2023 was kind of a brutal year. At least 2024 has started with some diagnostic tests and a plan! Last year was engrossed in new fri…
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I have been referred to see a specialist who deals specifically with the muscles at the back of the eye. Before I get to see her, I needed…
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This past year has been a pretty rough year for health. Last September, I was removed off of a medication to explore different potential d…
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My biopsy results came in today from the upper and lower scopes I had done last weekend. There was active esophagitis and an ulcer in my e…
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Last week I was having major pain in my esophagus. Suspecting esophagitis (which I've had before), my family physician called in a pres…
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