This blog is often a place for me to tell my morbid medical jokes, to point out the funny or lighter side of things that I (and many other people) deal with.
Joking is how I cope with tough situations on a day to day basis.
Like the fact that I woke up Sunday morning to an empty tub of Turtle's Ice Cream in the garbage can. I don't recall eating it on the Saturday because I was on a lot of medication, but I ate it! AND I EVEN documented it in my MyFitnessPal app since I am trying to keep track of my calories. At least I spread it out over the whole day! So that was good!
Another coping mechanism is venting. Sometimes I can vent to certain friends, most of the time I vent with family, and once in a while I can vent on here.
The 'vent' or 'thought' of the night is this:
I feel like a completely different person. Pain changes a hell of a lot. I've dealt with a lot of uncontrollable change due to illness in several aspects of my life, over several years of my life. But, I believe, the biggest change has been within the last year.
Before May 1st, 2012, I would refuse to even take extra strength Tylenol unless I was dealing with an unbearable migraine, or on my way to emergency. A T3 was used literally once in a blue moon. Up until May, 2012, I had a half-full bottle of Tylenol No. 3s in my pantry - a prescription from 2002 when I was in the Children's Hospital.
Now... I can't go one day without a pain medication. I can't stand straight in the shower without a heavy pain medication. On a good day I can bring it down to one. Actually that's more of a great day.
People who knew me a year ago and before might not even recognize me right now.
I am not playing volleyball anymore, I am no longer able to work (for now), I can't sit (or stand, or walk, or even be out) for more than an hour or two before being unbearably uncomfortable.
I don't want to complain much because I know that compared to SO MANY, I still have it really easy. I have all of my limbs, I can still drive, I am still living on my own for now, I have several resources and an undying affection from family and friends that keeps me going every day.
My only negative thought tonight is that if someone met me maybe in 2011, really truly got to know me, and then met me today, they would be terrified. That scares me sometimes.
I'll get back. I'll get my life back and I'll be one of the luckiest people in the world. Today is hard.
Joking is how I cope with tough situations on a day to day basis.
Like the fact that I woke up Sunday morning to an empty tub of Turtle's Ice Cream in the garbage can. I don't recall eating it on the Saturday because I was on a lot of medication, but I ate it! AND I EVEN documented it in my MyFitnessPal app since I am trying to keep track of my calories. At least I spread it out over the whole day! So that was good!
Another coping mechanism is venting. Sometimes I can vent to certain friends, most of the time I vent with family, and once in a while I can vent on here.
The 'vent' or 'thought' of the night is this:
I feel like a completely different person. Pain changes a hell of a lot. I've dealt with a lot of uncontrollable change due to illness in several aspects of my life, over several years of my life. But, I believe, the biggest change has been within the last year.
Before May 1st, 2012, I would refuse to even take extra strength Tylenol unless I was dealing with an unbearable migraine, or on my way to emergency. A T3 was used literally once in a blue moon. Up until May, 2012, I had a half-full bottle of Tylenol No. 3s in my pantry - a prescription from 2002 when I was in the Children's Hospital.
Now... I can't go one day without a pain medication. I can't stand straight in the shower without a heavy pain medication. On a good day I can bring it down to one. Actually that's more of a great day.
People who knew me a year ago and before might not even recognize me right now.
I am not playing volleyball anymore, I am no longer able to work (for now), I can't sit (or stand, or walk, or even be out) for more than an hour or two before being unbearably uncomfortable.
I don't want to complain much because I know that compared to SO MANY, I still have it really easy. I have all of my limbs, I can still drive, I am still living on my own for now, I have several resources and an undying affection from family and friends that keeps me going every day.
My only negative thought tonight is that if someone met me maybe in 2011, really truly got to know me, and then met me today, they would be terrified. That scares me sometimes.
I'll get back. I'll get my life back and I'll be one of the luckiest people in the world. Today is hard.