Posts

Constant Trade-Offs

Battling chronic illness means constant trade-offs. No matter how hard you try, you are always giving up something to gain something. You a…

Headachy

Well, I think the worst of taking fewer meds is over. Obviously the pain remains higher... it is averaging about 6/10 for most of my joint…

Bad Dreams

Bad dreams are simply a part of life. Everyone experiences bad dreams, everyone has experienced that moment of panic when you wake up unab…

Experiencing the Other Side

So I had a different kind of experience at the hospital yesterday. When I got home, I showed up to an empty garage, and found out that Rya…

Before the Survey Results

Before the survey results come in, I wanted to write a little bit about my personal situation. What I have found (and what I was also prev…

Free Collagen

You may not be able to notice, but today my lips are a tiiiiiiiny bit swollen. Comes with the territory of HAE. So for an extra pouty look…

Loss of Identity

This weekend is dedicated to our Marriage Preparation Course. Overall it has been pretty good. Lots of exercises within the booklet and lo…

Exercising

It has been several years since I have felt well enough to do any real exercise. Before surgery I was just so much weaker and so much more…

Survey

We have all called in sick before. Most of the time it's because we really are sick and can't even fathom being capable of working…

What is an ER for?

After a tragic event in the hallway of an ER, people are speculating on what an ER should really be used for. It is an Emergency Departmen…

Bravery

I recently read a post about bravery in regards to IBD. The bravery of spouses who stand by their significant other while they go through …

National Ostomy Awareness Day

It's Ostomy Awareness Day (apparently). Here is my story of dealing with an ostomy bag (please note it can get graphic) If it might m…

A Life Sentence

I don't know if anyone remembers me talking about suffering and how suffering is the same whether it is self-inflicted or not. Obvious…

A Sign of an Effective Medication

Okay, well this is a pretty telltale sign that a medication is truly working some wonders: During my twice-weekly sub-cutaneous morning in…

Scapegoat - Auto-Immune Illness

The rise in auto-immune illness has a direct correlation with companies using that fact as a scapegoat. There are toxins released when yo…

The Hulk

I have Hereditary Angioedema... This can include the following: • There is something wrong in my blood. • When I get angry I swell up. I…

Nooooooooo Airmiles!

That dreaded day has arrived. When picking up prescriptions, no one is entitled to receive any kind of points or miles for any rewards pro…

Easy Weight Loss

After my last big surgery, I started to work on losing a few extra pounds. Nothing crazy, just get in better shape and focus on eating bett…