Something happened this week.
I am not sure exactly what triggered it - the spring rolls, being on one of my antibiotics too long, or just a general flare - but something happened that flared things up really badly. REALLY badly.
In hindsight, really the problem was that I stayed on Flagyl for 3 weeks instead of just 2 weeks.
I tried to push it because Doxycyxline is out of the rotation right now because it stopped working, so I give it a break for a few months then try again.
This flare hit me so abruptly that it didn't strike me that all it was was the antibiotics. It hit SO hard and SO fast that I would have sworn something else was at work.
I spent days as sick as I was in 2015 with the haywire thyroid levels.
I was started trying everything. Over two-three days I hit the symptoms with everything at my disposal that was safe to try (and not all at once).
I switched my antibiotics.
Three hours later I was able to get down a piece of toast (and keep it in for longer than 10 minutes).
My energy got better (super slowly).
Yesterday it got even better. I was able to get down two plain crêpes and some orange juice.
Then, all of a sudden, in the middle of the night, I felt 'normal'. Today was going to be a normal bad day, instead of an excessively out-of-the-ordinary bad day. Around 3am I just knew that I was back within my normal range of 'bad'. It is a fine line, but I felt relief when I knew.
So then today I got down some chicken noodle soup and half of a dinner roll, then a piece of toast with avocado and egg with mayo.
That's huge!
I have probably lost 5lbs or more just because of this week (they definitely had to take my dress in a little bit).
From one medication not doing its job. That's it. One pill. One pill a day out of way more than I would like to be taking - if ONE falls out of line I can be completely out of commission. I can be so weak that I cannot even stand up straight for 10 seconds. One wrong dose and I am not strong enough to get dressed by myself.
Luckily we found the issue and I am on a different medication that has me on a better trajectory.
BUT
What do I do if, in two weeks, Flagyl still doesn't work? And what if Doxy still doesn't work either?
It means that I will force myself to live through the hellish part of my disease for a week while I take a break from all of them, so that I can go back on the one I am on now for our wedding. I want to have energy for our wedding day/weekend, so I want to be on the combination of medications that will give me the best chance. If that means having to have a bad week again for that to happen, then I don't really have an option. The only other possibility is Prednisone, and I refuse to open that can of worms until I actually need my life/intestine to be saved.
Well, keep your fingers crossed!
On a majorly positive note, I just found out that the World of Dance tour is coming here!!!!! They are coming here and I found wheelchair accessible seats and Rj is coming with me and we're going to see World of Dance!! Aaaaahhhhh.
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