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Friday, 28 February 2025

Spoonie S.A.F.A.RI

 

I explain what this is and how it relates in this video

Essentially, it's the journey that every spoonie undertakes after developing new, unsettling, symptoms. 

Sometimes we're lucky enough to only experience the first few stages, but most of the time we get the entire S.A.F.A.RI, whether we want to or not. Then, afterwards, we need to figure out a plan on how we're supposed to deal with the results of investigation. 


Now here's a question: 

During this kind of journey, at what point do you feel the most anxiety?? 

My personal anxiety comes the worst when I've realized that it's likely a permanent change to my normal existence but when we haven't figured out exactly what it is. Once the symptom is evidently chronic, I want to know what it is, what may have caused it, and how best to deal with it. I want a diagnosis so that I can move forward, while also ensuring that I am not unwittingly making things worse. I also have found (the hard way), that sometimes people don't take you or your symptoms seriously without an official diagnosis. 


Other people feel more anxiety after the diagnosis, because that's when it seems to make it real. It's easier to ignore something if there isn't an official name to it. Also, sometimes once a diagnosis is reached, the level of care and support can be reduced - you're no longer a puzzle to be solved. 


Where does your anxiety come from when you experience new symptoms? 

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