I was about 16 years old, before surgery, suffering from Ulcerative Colitis and Recurrent Pancreatitis primarily. I had already been through the list of immunosuppressants and usual medications, with no luck and some traumatic allergic reactions and hospitalizations.
At the time I would have already undergone dozens of scopes (mostly rectal), barium follow-throughs, endless blood tests, and several hospitalizations.
The only medication that even remotely relieved any of my symptoms was Prednisone, and if you know anything about Prednisone, it's that you don't want to stay on it for long.
One of the most difficult symptoms that you can experience with IBD is urgency mixed with incontinence. It's that you feel like you have to go, even when there is virtually nothing in your system, and then a cramping warning with only a few mere seconds to reach a washroom. On my worst days, I would only get a 2-3 second warning. Before that terrifying and painful cramp, there would be no indication that I would need a washroom. Then - the cramp - and I would have seconds to reach a washroom, because my body would expel whether or not I was in an appropriate place.
(On a side note, this symptom has now returned, and on some days it has gotten as low as a 15 second warning).
So, 16 year old me walks into a drugstore. I had to buy specific items that are embarrassing to buy. (And this was before the time of self-checkouts where you could skip the inevitable curious stares, or worse yet, the judgmental). This was also in a gossip-riddled city.
Awesome.
So I walk in, grab my Depends, and head straight for the pharmacy. Usually pharmacists and techs are very discreet, empathetic, and kind.
Usually.
It was quiet in the store, luckily, and there was no lineup. I asked the lady if she could recommend a product. Due to so many accidents and having to wear Depends on a semi-regular basis, I was experiencing some severe evidence of chafing.
I can't even begin to express how difficult this was to ask anyone about.
So she smiled and said she would show me some products that may be of help.
I followed her, slowly due to nausea, and by the time I reached the aisle, she was already 3/4 of the way down and had reached the product.
Rather than waiting until I got to her, she proceeded to YELL - loud enough for the entire store to hear - that "YOU COULD USE A REGULAR DIAPER RASH CREAM FOR THE RASH THAT YOU'RE EXPERIENCING FROM INCONTINENCE".
I wasn't sure how to respond. Once I got to her I have her a curt 'thanks', then told her I could take it from there.
She gave me a sneer and then left me crying and embarrassed and utterly ashamed.
I added chocolate to my cart and then I went through the till not making eye contact with one person. To her credit, the cashier actually looked more sympathetic. Everyone in the store had heard - even if it was only the staff and a few customers.
I am guessing maybe she thought I was a young teenage mother? Or maybe she was just a dick. It doesn't matter what she thought, that was completely uncalled for.
Now - here's the bright side - if this was a sitcom, that scene would be absolutely hilarious.
This flushed teenager, racing to the washroom and concealing extra underwear in random spots, having her embarrassing 'rash' being broadcast across a store.
Reading the story with a comedic sitcom perspective completely changes the atmosphere.
At least my life has some morbid excitement to it, right? ;)
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