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Quick Tip

Quick tip:  If you have complex, chronic illness, having a note in your wallet that explains all pertinent medical information could be a l…

Acronyms

Karissa Pentlichuk,  BASc, IBD, AS, HT, OTS, BLD with GA, PsO, IAE, TMD, CM When I was in university, I would dream of the educational pos…

Why Are Medical Terms So Confusing?

Why do some medical terms/diagnoses have to be SO complicated?! Here is a rundown of my understanding:  Yesterday I met with my new Ophthal…

Slowing Down

One thing I used to say, and a phrase I hear often from many individuals with chronic illness, is "I don't let my illness slow me …

Head Pain

In July this summer, I woke up one morning with a brutal pain in my head on the right side. I thought it was maybe a migraine, but it didn&…

Growing Up

I believe that one of the most profound elements of growing up is realizing just how ridiculous the beliefs and judgements were that we hel…

Truly Invisible

We, the collective 'we'  of Spoonie-dom, speak a lot about Invisible Disease; the illnesses that cannot be perceived by a cursory g…

Spoonie S.A.F.A.RI

I explain what this is and how it relates in this video .  Essentially, it's the journey that every spoonie undertakes after developi…

General Medical Update

Here is the rundown and update as of Feb 2025.  I am currently 38 years old, turning 39 this August.  Diagnoses & Chronic Conditions: …

Symptom Catalogue

I would say that a good 90% of daily living wiith chronic illness is just unwillingly cataloguing all types of symptoms and sensations from…