Posts

Truly Invisible

We, the collective 'we'  of Spoonie-dom, speak a lot about Invisible Disease; the illnesses that cannot be perceived by a cursory g…

Favourite Pleasant Surprise

Let's face it - dating with any kind of chronic illness can be incredibly difficult.  Dating with illnesses like Crohn's Disease, U…

Small Inconveniences of Being Sick

So we all know the tragic parts of daily life with chronic, painful, incurable, and not-well-understood illnesses.  But what about the smal…

A Week in the Life: My Crohn's Diet

Let me preface this by saying that my current 'diet' has nothing to do with diet trends. It has nothing to do with a list of recomm…

Frayed Tightrope

Chronic illness often feels like I'm walking on a frayed tightrope.  I can't fix everything. No one can. We can't e…

Volleyball

This story is a favourite of mine - even though it is also one of my most significant pivots, and heartbreaks, in life due to illness.  Vol…

New Symptoms

When some new symptom comes up, there is a predictable set of events that has to occur before I finally speak with a physician about it. • …

Random Questions - What Do You Do After a Bad Appointment to Feel Better?

February Chronic Illness Warrior Question:  What do you do after you've had a bad/tough appointment??  I used to go and buy myself some…

Love What Matters

This past week I was asked to write a condensed version of my health story for the website Love What Matters .  This website is dedicated …

Post RFA Yoga Session

I'm still pretty sore but managed a short outdoor yoga session this morning. What a beautiful day!!������������������������������������…

Quick Tip: Dehydration

With any kind of Inflammatory Bowel Disease, dehydration can be a persistent issue. If your bowels don't work properly, there is a lot …

Fight the Fusion 2021

That time of year is coming up NEXT WEEK!!  On Tuesday, April 27th, the 8 day Fight the Fusion week starts.  Fight the Fusion is all about …

Burping Update

Long story short: I started burping every 5-10 seconds late Thursday night and couldn't stop. My guts felt like they were being filled …

Thyroid Issues

Over the last couple of months, I have suspected that my thyroid levels were out. I have been having mood swings and uncharacteristic irrit…

Disease-iversary

As of this month, it has been twenty years with Inflammatory Bowel Disease.  While I have other illnesses that significantly impact my life…

Dreaming of Pain

I always find it fascinating how my subconscious interprets physical pains.  Whenever I go through a flare-up or a painful procedure, you c…

What to Wear to Procedure Appointments

Picking out an 'outfit' for certain procedures may seem completely ridiculous, but there are some very compelling reasons why your …

Nerve Freezing

Last week I had my first appointment of having my nerves frozen in my SI joints in preparation for nerve ablation.  The preparation for the…

Fight the Fusion 2020 Update

Last year I started an annual fundraising campaign to help bring awareness to arthritic illnesses like Ankylosing Spondylitis. We had a bun…

Struggling with Isolation

Self-isolation and social distancing is relatively simple in its concept, and difficult in its execution.  As I have mentioned on here befo…