When you get diagnosed with a chronic disease, you know (theoretically) what the progression will be. The most important part of this is th…
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This week, I was (as my case manager worded it) "put through the ringer". Let's start with Monday morning. With the reappea…
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Bloodwork. What an annoying reality of the chronically ill. It is one of the least invasive tests and can provide information on virtuall…
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Here is the blatant, unfortunate, truth about my body. Currently: I have constant or recurring inflammation in my small intestine (my lar…
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Being off of work can cause a lot of personal turmoil. When I first went off of work, it wasn't even my idea. Things had gotten so com…
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Other than feeling borderline narcoleptic this past weekend, I had a great Valentine's weekend. Yesterday was pretty much perfect - th…
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Valentine's Day. Usually, on this day, I have a get together with the girls and we have a single's day, with pink and red baking a…
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Stopping to smell the flowers - this has been a metaphor for as long as I can remember, and it seems particularly important, and also parti…
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One of the most important coping strategies is to manage expectations, to learn to roll with the punches, and to adjust your mindset. My b…
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After my busy weekend of fun, this whole week has been written off. Every day this week I have not spent more than 4 hours awake each day. …
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After a challenging day, and then another day with some small frustrations, there's nothing like eating comfort food. And what's m…
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Today there were several things that had to get done from a very long 'to do' list. Phone calls, one major appointment, followed b…
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As most of you already know, I am a big advocator of trying to have a good quality of life, no matter how ill you might be. This sometimes…
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Managing chronic illness requires patience, strength, and one hell of a will power. One thing that is always difficult is finding that per…
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