For some reason, the first week after my Cosentyx injection, my body seems to be hypersensitive.
It is almost like my body is intolerant while the medication is fully absorbed into my body. Of course, it shouldn't take a week for it to absorb, so maybe my body is just pissed off for a week afterwards. Or maybe it has to do with something completely different.
All I know is that Cosentyx Week is touch-and-go. I always get that warning throat tickle for the entire week, sometimes longer. So, during that week, I try to avoid any other triggers of Hereditary Angioedema swelling.
Unfortunately for me, I have a lot of HAE triggers. Excitement, nervousness, physical activity, stress, dental work, etc.... the list goes on and on.
While my swells are contained, for the most part, to my insides and extremities, because of a miracle medication I take, sometimes I still get severe swelling that can be scary.
It can get really scary.
Yesterday I had a dentist appointment.
I had already postponed appointments several times this year, and I have a TON of things going on in the very near future, so it was kinda my last real chance to go to the dentist before the wedding.
I was still nervous to go. (Which, confounding enough, likely exacerbated the situation).
I got through it okay, but by the time I got home, my throat tickle was worse. Within half an hour my voice had changed and was hoarse. I quickly did an extra sub-cutaneous injection (this can often take care of impending swells).
Ryan was with me for all of this, so I had extra monitoring. (He is pretty great isn't he?)
We allowed the medication to work for 1.5 hours... but I got worse. Quickly.
By the time we reached the ER, my breath was 'catching' in my chest. It feels like a kink in a 'hose', I had audible shortness of breath, and it was too laborious to talk.
They got be in immediately, did a quick assessment, and started mixing the medication that I brought with me for IV treatment.
Then, again, halfway through the IV injection, my breathing was already slower. It continued to get better and, within minutes, there was no 'catching', way less hoarseness, my lightheadedness had faded, and the only thing left was the slight 'tickle' in my throat.
After these episodes it always amazes me how quickly this medication works. Of course, after an episode like this, my throat is always sore. It hurts - a lot. The back of my tongue hurts, my throat, my chest, my esophagus - it is all really sore.
They say that sub-cutaneous prophylactic treatment works longer, but that we only absorb 60-75% of the medication. With IV you absorb 95%+. It makes a difference! A big difference.
Of course I still do my prophylactic injection today - which is good because there is a risk of rebound.
While I do my best to stay calm and avoid making things worse, it can be really scary to have that much trouble.
I am lucky because I have warnings. Those warnings help me get treatment in time so that my throat does not become completely obstructed.
I am lucky that I had company to help monitor how quickly things progress.
I am lucky that I am already on medication, as this episode could have been so much worse if I wasn't already taking something.
I am lucky to live in Canada and have access to treatments like these.
I am lucky I no longer live all alone.
I am lucky to be feeling so much better after such a bad episode.
I am lucky for a lot of things.
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