Diagnostic years are absolutely exhausting! A diagnostic year is when new symptoms pop up, or a change is made, which begins a cascading e…
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I've been struggling lately with some very annoying (and often mildly-moderately painful) symptoms since coming off of a medication. I…
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Lots of updates happening lately. Here is the current update of the swelling disease/disorder that I have. Since the end of 2010, I have h…
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Weight can fluctuate for an entire list of reasons... Changes in eating habits Medication Hormonal Changes Illness Changes in activity…
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Today was World HAE Day! Hereditary Angioedema (HAE) is a disease that causes severe swelling episodes. The most common areas of swelling …
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It still amazes me how much one day can affect my body. How much one THING can cause such a chain reaction. On Saturday, a friend had a ta…
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It turns out that I have had a simple symptom for YEARS that I never knew was a symptom. Over the years, with any singing competition or p…
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Although it is fairly normal to have a scale in the home, when you have diseases in the digestive system, ones that increase water weight, …
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In past posts I have mentioned being allergic or intolerant to various medications. I wanted to explain a bit about what that means and wha…
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I was diagnosed with Ankylosing Spondylitis in 2013. Around eight months earlier is when I first started experiencing symptoms. My hips we…
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Last night I had a really tough time sleeping through the entire night. After I attempted to get back to sleep, only to find myself starin…
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My recent 'Ask Me Anything' post got a bit of engagement. My post: "Ask me anything about Hereditary Angioedema". The …
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We got married this year!! September 22, 2018. Beautifully perfect day, with no real problems other than the health complications we expect…
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It's treatment day!!! Which means a painful needle to the gut. So why am I excited? It is amazing how someone can become accustomed …
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For some reason, the first week after my Cosentyx injection, my body seems to be hypersensitive. It is almost like my body is intolerant w…
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With Hereditary Angioedema, any extreme emotion can trigger a major episode. Anger, frustration, anxiety, panic attacks, being frightened,…
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Okay I have to give major props to my friend Carmen. After reading my previous blog about my current pukey situation probably due to excit…
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Well.. I am not able to do much, but every now and then, every few months, I get an opportunity to sing. As long as I have people availab…
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I tend to get self-conscious a lot about my illness. Sometimes I feel like I am being too cautious, other times I feel like I push myself t…
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