Many of my writing occurs late at night, in the middle of the night, after procedures, or maybe even a drink or two when I am able to have …
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How nice it is to have a wrist band that has NOTHING to do with hospitals or procedures or allergies or medic alert reasons!! Grateful for …
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I got to go to a concert at the Jack Singer concert hall to go and see Home Free live for date night. This is, by far, the best concert th…
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These days, I am a fan of heat (in moderation of course). I love my bubble baths, I have more herbal teas than I do shoes (this is a huge d…
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I love reading. I love reading historical fiction novels, medical thrillers, poetry, short stories - any story that is riveting. Right no…
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Today hasn't been a great day. It hasn't been excruciatingly awful or anything... Just complicated and painful. I'm not sure …
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Yesterday was actually a pretty perfect day. I was pretty body-tired when I woke up, but I managed to have enough energy to visit the farme…
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I recently had an interesting discussion with a woman who has a disease that I also have. She was asking a group of people what each person…
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I have spoken/written a lot about modification. Modifying activities, goals, expectations, rules, wardrobe - anything that helps make life…
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Over the past few months, since one of my medications has been failing, my 'cycle' has come back after, basically, eleven years of …
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Every bad day has a bright spot somewhere... You just have to look for it! To be honest, today wasn't TERRIBLY bad, and there were sev…
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I had my appointment with the Ophthalmologist today. After a bunch of scans and an angiogram of my eyes, nothing is blatantly obvious. He …
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