Posts

General Medical Update

Here is the rundown and update as of Feb 2025.  I am currently 38 years old, turning 39 this August.  Diagnoses & Chronic Conditions: …

Diagnostic Years

Diagnostic years are absolutely exhausting!  A diagnostic year is when new symptoms pop up, or a change is made, which begins a cascading e…

A Rough Year

This past year has been a pretty rough year for health.  Last September, I was removed off of a medication to explore different potential d…

Dietary Update - potatoes, potatoes, potatoes

Things are starting to move in the right direction!  On November 20, 2022, I reduced to a mostly liquid and soft-food diet. Every 2-3 weeks…

Living With Severe Body Fluctuations

I JUST wrote about body shaming and how it affects and is affected by chronic illness.  One of the main themes about having some of the ill…

Bravery Isn't A Feeling

There's something really confounding about the word "brave".  When you're ill, especially with something chronic or somet…

Rare Disease Day - Mind-Blowing Daily Symptoms

Feb 28 is Rare Disease Day!  What very normal/daily symptom do you deal with that would be considered mind-blowing to someone w…

Sometimes You Just Have to Laugh About It

I've been struggling lately with some very annoying (and often mildly-moderately painful) symptoms since coming off of a medication.  I…

Swelling Disease Update

Lots of updates happening lately. Here is the current update of the swelling disease/disorder that I have.  Since the end of 2010, I have h…

Family Feud Perspective

Super interesting moment tonight.  We were watching Family Feud and this question came up: "How many days would you say you spend sick…