Posts

A Good Time for a Good Bed

I just recently upgraded from a double-size bed to a much nicer queen-size bed.  It's a damn good thing too, because for the last few w…

The Process of a Medical Day

When the average person has the following schedule, it may not seem too involved:  Doctor's Appointment: 1pm Bloodwork and urine sample…

Nothing Beats A Good Appointment

With a list of complex, complicated, and misunderstood illnesses, sometimes the healthcare system can feel like it is letting you down. Wit…

"Light Reading"

So - it turns out that there ARE a couple more anti-nausea medications out there!!!  Hooray!!!  After a very long day - starting with a two…

Help Improve Education on Rare Disorders

This weekend I registered to attend an information session at the hospital, put on by the Network of Rare Blood Disorders Organizations.  H…

A Modern Love Story - The Real Version

How do you ACTUALLY find real love?  In our immediate, impulse encouraging, fickle mind changing, instant knowledge, and short-term dating …

Categorized: Youth

One of the GREAT things about having several illnesses that have been stereotyped as elderly diseases, is that when support group coordinat…

Sleep Disturbances

Oh man - I tell ya - over the course of the last 15 years, I am pretty sure I have had bouts of all of the most common sleeping issues know…

Feeling Grateful

Heading into the (Canadian) Thanksgiving weekend, we are encouraged to purposely think about everything in our lives that we are grateful f…

Ask Away

When we are kids, we have to learn what kind of questions are appropriate to ask others. Kids have no filter and are generally pretty inqui…

Just Bad Luck!

It seems that I often have bad luck when it comes to washrooms.  Maybe it has something to do with the fact that I use the washroom much mo…

General Tips & Tricks

Traveling while being chronically ill can be tricky. It doesn't really matter if you're flying, driving, sailing, even walking, and…

Cellulitis

If you have been following along, you will know that I have several chronic conditions - some of which are not AT ALL connected with each o…

Multitasking - Benefits and Downfalls

It seems like just about everyone is multitasking 100% of the time.  Even when I was in University, it was not unusual to see textbooks fro…

Everyone Needs A Break

One of the toughest social aspects about being sick is how we compare ourselves both to others around us and to an earlier version of ourse…

Intuition and the Soul

Science is something that I have grown to really love. Not because I necessarily wanted to, and definitely not in the manner I would have w…

Opthalmologist Follow-Up Appointment

I had my 6-month follow-up appointment today with my ophthalmologist. Well, my actual ophthalmologist was on call at the hospital, so I saw…