Posts

Frayed Tightrope

Chronic illness often feels like I'm walking on a frayed tightrope.  I can't fix everything. No one can. We can't e…

Dietary Update - potatoes, potatoes, potatoes

Things are starting to move in the right direction!  On November 20, 2022, I reduced to a mostly liquid and soft-food diet. Every 2-3 weeks…

Living With Severe Body Fluctuations

I JUST wrote about body shaming and how it affects and is affected by chronic illness.  One of the main themes about having some of the ill…

Body Shaming and Chronic Illness

Oh man.  Body shaming is bad. Period.   Dealing with body shaming when you have any kind of illness, especially those that cause uncontroll…

Bravery Isn't A Feeling

There's something really confounding about the word "brave".  When you're ill, especially with something chronic or somet…

Medical Episodes Worthy of a TV Show Plot

Have you ever endured some medical situation or crisis that you thought could encompass an episode of one of the various medica…

Rare Disease Day - Mind-Blowing Daily Symptoms

Feb 28 is Rare Disease Day!  What very normal/daily symptom do you deal with that would be considered mind-blowing to someone w…