Posts

Funny Moment

Today, on my way to an appointment with a new specialist, I had a great funny moment with a lady who was also getting on the elevator.  We …

In Limbo

My life is a constant rollercoaster.  There are ups and downs, sometimes they last longer than others, and sometimes my entire world gets t…

Missing Civilization

Finally today I was able to actually go out to a local pub and have a drink! It's the first drink I have had since March 8th.... And th…

Music as a Coping Strategy

Having fun with music and my dog are big coping strategies. Here are a few videos to show you what I love to do and how this has become a g…

Fountain of Youth

Next time someone stares at me a little while I'm using a walker, I am going to tell them that I have found the Fountain of Youth. That…

What's My Secret?

In our society right now - the desire to be 'skinny' has gotten out of hand. It seems that there might be a trend to wanting health…

Comfort Food

My appetite and eating habits are pretty complicated right now. I have to be on constant anti-nausea meds just to function, I am not hungry…

Airmiles

The whole issue about receiving rewards points of any kind for prescription medications is back on the forefront.  As far as I understand i…

Still Smiling!

Just because I am having a tough time doesn't mean that I can't continue to enjoy life.  After finally canceling my gym membership …

Minimizing Variables and Asking the Right Questions

Now I have mentioned the benefits of using a medical diary before. The importance of keeping track of medicines, activities, diet, even env…

An Opinion on Tea

I have been seeing a lot of advertisement on Facebook, Instagram, Pinterest, Twitter etc... about tea that helps people lose weight.  What …

Small Victories

Today's small victory was being able to walk to and from the mailbox by myself! The mailbox is about half a block, in the complex t…

Good Day

Today was a good day!  I took my meds an hour before having to get out of bed, so I got up with relaxed muscles and a calm-ish stomach.  Th…

The Guessing Game

The guessing game is pretty tough to avoid when you are so desperately wanting answers. One of the biggest things to avoid - which took me …

Vacation Days

Being a full-time patient means that you also can't really book holiday time off. It's like people who take vacations from their jo…

Finding a System

Ways to cope. Ways to live. It all depends on finding a good system to be able to go about a daily life even with awful symptoms. The good …

Channeling

One of the biggest struggles is having to give up the things that you love. Adaptation is key to surviving in the world of chronic pain. Ta…

Fresh Air

I woke up today and took my dog outside. It was a little clouded over, but the air was fresh and birds were singing and there was no breeze…

Correlation Between Nicer Weather and Better Moods?

It's really nice to have some nicer weather. Instead of sitting and not being able to walk much so watching smut and sitting in front o…

Humiliation

I can honestly say that I am very happy that I lived through some of my most humiliating moments when I was a teenager. I am not talkin…

A Vial a Day Keeps the Doctor Away??

After getting my bloodwork done again today (a full 10 vials), I have had over 30 vials of blood taken in the last three weeks.  Oh boy.

Waiting Room Simile and Tips

Waiting rooms are like rush hour traffic. You hurry up to get going, then you basically just sit there. Here are a few tips to get you thro…

CCFC Black and Gold Gala

I am very much looking forward to this event. Not only will it be an incredible and entertaining night, but yours truly will also be singin…

Describing Pain

I have all sorts of descriptions for how I feel. I can describe to you in detail of how the pain feels in every single part of my body. But…