I woke up again in that 'sleep paralysis' state. Before I had gone to bed tonight, Decker was being a monkey, so I had made him go …
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After almost two extremely tough years, I can finally say that I have energy. When I initially stopped working, I was still able to be act…
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Today - again - I accidentally drove to a medical center when I should have been going downtown. In my defense, this time, the medical cen…
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Today my mom was in town and we decided to try doing a little shopping. She had a gift card, I needed some food for Decker, and I wanted to…
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This is my oxymoron of the day. I had lots of energy today! Again! That's two days this week. With all of the energy, despite EXCRUTIA…
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Imagine: 14 year old girl needs to shop for clothes. The average 14 year old girl would want to meet some friends at the mall, hang out, m…
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Today I woke up with energy!! I also woke up with major nausea, but once I got over to the pharmacy for the king of anti-nausea medication…
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Today is my day to be productive. Time to make medical phone calls. Now, most medical phone calls can be as simple as reaching a reception…
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Today, my only medical appointment scheduled was bloodwork. Bloodwork is relatively easy. One needle poke and a couple of vials later and …
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Today was an important appointment. Finally got some paperwork filled out by my specialist. There are a few things that these appointments…
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Heard a quote today while watching one of my favorite shows. It was a quote from the Bible. "The more blessed you are, the worse you…
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March is coming up quickly, and there isn't much time left to fundraise. This year I am going to, again, be involved in The Power of M…
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Today I had my appointment with the immunodeficiency specialist. I am thrilled that she was able to get me in so soon in the new year. Th…
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Since we are on the topic of dreaming... And this blog is in need of a lighter post: There is this meme that goes around that states: You…
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Sleep Paralysis: Basically it is waking up (sometimes very briefly) in the middle of REM sleep, and is said to happen in about half the pop…
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Have you ever thought or said a phrase like: "I'll do that when I feel better" Or "I'll start working on that whe…
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It is getting closer to that one-month mark since my last severe intestinal Hereditary Angioedemic attack, resulting in 9 hours of constant…
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I have mentioned this particular 'habit', or 'coping strategy' before. It is the idea that when I feel awful, I take the ti…
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I found something out this week that I did not know. In hindsight I really should have guessed this, but I guess it hadn't crossed my …
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