Posts

Coping With Long Wait Times

This is a topic that was liked by multiple people to write about - and it's such an important topic:  How do you cope with …

Daily Life with IBD

What is it like to live with Inflammatory Bowel Disease (like Ulcerative Colitis or Crohn's Disease...)?  The short version…

Audiologist Appointment

This afternoon I had an appointment at a hearing loss clinic with an Audiologist.  In early January I had sudden onset of tinnitus (ringing…

Eye Illness Update

Today I did a buccal swab for a genetic test. We are testing the EFEMP1 gene, looking for a mutation that would cause Familial Drusen (also…

Small Inconveniences of Being Sick

So we all know the tragic parts of daily life with chronic, painful, incurable, and not-well-understood illnesses.  But what about the smal…