Posts

Time & Spoon Management

Do you ever feel like most of your time is wasted being sick??  When I am going through a particularly bad spell, all I focus on is listeni…

Small Inconveniences of Being Sick

So we all know the tragic parts of daily life with chronic, painful, incurable, and not-well-understood illnesses.  But what about the smal…

Bravery Isn't A Feeling

There's something really confounding about the word "brave".  When you're ill, especially with something chronic or somet…

Volleyball ?

Okay - some of THE best news!  I have been able to play a tiiiiiiny bit of volleyball!  If you know me (or have been following along with t…

Post RFA Yoga Session

I'm still pretty sore but managed a short outdoor yoga session this morning. What a beautiful day!!������������������������������������…

RFA #3

My radio-frequency ablation is finished for another year!!  My recovery this year has been much better than the last two years. AND they on…

Chronic Illness Makes You Feel Like a Liar

I always feel like a liar. Not because I'm lying, but because chronic illness is so variable, unpredictable, and always changing.  For …

Fight The Fusion 2022

This year's Fight The Fusion has, again, been very lowkey. I can't entirely blame the pandemic.... so let's just say that life …

Fight the Fusion 2021

That time of year is coming up NEXT WEEK!!  On Tuesday, April 27th, the 8 day Fight the Fusion week starts.  Fight the Fusion is all about …

Trigger Point Injections

On Friday I saw my doctor to get my Botox for migraines. The drastic weather change mixed with the Botox wearing off caused nearly two week…

Sprained Toe

My yoga practice often includes toe balances, like in the pictures below.  My best defense against progressing Ankylosing Spondylitis is st…

Smart Device and Chronic Illness

Picture this:  You are given a device.  This device has to last you a lifetime. There are no exchanges, no returns, and none available to p…

Tippy Toe Yoga

Moving into stretches on tippy toes is now part of my standard practice. When I first began trying to find the balance and core strength to…

Yoga in the Snow

There is just something about being outside when the air is crisp and the snowflakes are massive.  It also helps when the pups want to get …

Ablation Update

Alright - it has now been over a month since I had the nerves in my SI joints ablated to help with some of the pain caused by Ankylosing Sp…

SI Joint Radio Frequency Nerve Ablation

Man, that's a complicated title. Radio Frequency Ablation in the nerve endings around my SI joint and lower spine.... Essentially, the …

What to Wear to Procedure Appointments

Picking out an 'outfit' for certain procedures may seem completely ridiculous, but there are some very compelling reasons why your …

Nerve Freezing

Last week I had my first appointment of having my nerves frozen in my SI joints in preparation for nerve ablation.  The preparation for the…

Day One - Fight the Fusion 2020

Welcome to Day One of Fight the Fusion 2020. I started Fight the Fusion last year as a fundraising and awareness campaign to bring atte…

Fight the Fusion 2020 Update

Last year I started an annual fundraising campaign to help bring awareness to arthritic illnesses like Ankylosing Spondylitis. We had a bun…