This past year has been a pretty rough year for health. Last September, I was removed off of a medication to explore different potential d…
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Do you ever feel like most of your time is wasted being sick?? When I am going through a particularly bad spell, all I focus on is listeni…
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If you haven't seen the movie Passengers, there are spoilers below. In this movie, the ship that the passengers are traveling on start…
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One of the biggest myths of healthcare is a one-size-fits-all approach. We are led to believe that: Bacterial Infection -> …
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This is a topic that was liked by multiple people to write about - and it's such an important topic: How do you cope with …
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Things are starting to move in the right direction! On November 20, 2022, I reduced to a mostly liquid and soft-food diet. Every 2-3 weeks…
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Feb 28 is Rare Disease Day! What very normal/daily symptom do you deal with that would be considered mind-blowing to someone w…
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I've been struggling lately with some very annoying (and often mildly-moderately painful) symptoms since coming off of a medication. I…
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Lots of updates happening lately. Here is the current update of the swelling disease/disorder that I have. Since the end of 2010, I have h…
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Everything is temporary, we all know that, but when it comes to chronic illness, temporary is etched in our heads every single day - for th…
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My dysfunctional body has been through what feels like hell and back. It goes back and forth between good days and bad - every morning figu…
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Self-isolation and social distancing is relatively simple in its concept, and difficult in its execution. As I have mentioned on here befo…
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Managing Covid-19 and the economy is going to be a balancing act. Once we have reached and passed the peak of this first wave of infections…
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You Might Have a Chronic Illness if: • You were told nothing was wrong months-years before a diagnosis was confirmed • You have ever felt …
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I am an ambulatory wheelchair user. This means that I can only walk short distances, my body tires easily and can give out, and I often ne…
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Snowy days call for outdoor yoga practice. My day today is all about phone calls and filling out forms. Sometimes being the c…
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Living with any physical ailment is physically and mentally taxing. Who knew that living with illness meant taking on so much judgement, a…
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I have been in the strict habit of keeping a medical journal for years. I cannot take the credit for it, since I thought it was a ridiculo…
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It is often difficult to tell what anyone else around us is thinking, feeling, or experiencing. A fake smile can hide a life of loss and d…
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My energy has been pretty depleted as of late, so I am able to do less and less during the day before my body decides it's enough. Som…
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