Why do some medical terms/diagnoses have to be SO complicated?! Here is a rundown of my understanding: Yesterday I met with my new Ophthal…
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Oh my eyes. I love my eyes... well, I love the look of my eyes. They have been arguably my best feature. Underneath, however, my eyes ar…
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This past year has been a pretty rough year for health. Last September, I was removed off of a medication to explore different potential d…
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Today I did a buccal swab for a genetic test. We are testing the EFEMP1 gene, looking for a mutation that would cause Familial Drusen (also…
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There's something really confounding about the word "brave". When you're ill, especially with something chronic or somet…
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This past week I was asked to write a condensed version of my health story for the website Love What Matters . This website is dedicated …
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Everything is temporary, we all know that, but when it comes to chronic illness, temporary is etched in our heads every single day - for th…
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I have a fair few number of diagnoses. Most of them have something to do with inflammation and many of them are autoimmune in nature. This…
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My dysfunctional body has been through what feels like hell and back. It goes back and forth between good days and bad - every morning figu…
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Over the years, I have had to change medications countless times, often weaning one and adding another, sometimes only weaning, or simply a…
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With a slow-moving disease, like my Macular Degeneration, I find it fascinating to take note of its progression. Call it a morbid scientifi…
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Self-isolation and social distancing is relatively simple in its concept, and difficult in its execution. As I have mentioned on here befo…
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Managing Covid-19 and the economy is going to be a balancing act. Once we have reached and passed the peak of this first wave of infections…
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You Might Have a Chronic Illness if: • You were told nothing was wrong months-years before a diagnosis was confirmed • You have ever felt …
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I am an ambulatory wheelchair user. This means that I can only walk short distances, my body tires easily and can give out, and I often ne…
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I have been in the strict habit of keeping a medical journal for years. I cannot take the credit for it, since I thought it was a ridiculo…
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We live in the information age - the age when we document every little portion of our lives, when we take pictures of every mundane thing t…
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I would say that most of the time, I am working hard to maintain what I am currently feeling. Not because how I currently feel is all rainb…
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Sleep issues are normal for anyone with chronic illness. They can range from too much sleep, not enough sleep, insomnia, nightmares, halluc…
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Our perspective on food seems to shift on a regular basis. Foods and ingredients that were once considered healthy are now considered pote…
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