Posts

Why Are Medical Terms So Confusing?

Why do some medical terms/diagnoses have to be SO complicated?! Here is a rundown of my understanding:  Yesterday I met with my new Ophthal…

Making Workarounds Fun!

With my eyes, I am finding it too bothersome to drive at night right now. I have astigmatism in both eyes, plus the vision changes from the…

Eye Muscle Measurements

I have been referred to see a specialist who deals specifically with the muscles at the back of the eye.  Before I get to see her, I needed…

How Many Things Can Be Wrong in One Set of Eyes?

Oh my eyes.  I love my eyes... well, I love the look of my eyes. They have been arguably my best feature.  Underneath, however, my eyes ar…

A Rough Year

This past year has been a pretty rough year for health.  Last September, I was removed off of a medication to explore different potential d…

Coping With Long Wait Times

This is a topic that was liked by multiple people to write about - and it's such an important topic:  How do you cope with …

Eye Illness Update

Today I did a buccal swab for a genetic test. We are testing the EFEMP1 gene, looking for a mutation that would cause Familial Drusen (also…

Railroaded

What happens when you feel railroaded at an appointment?  With multiple chronic illnesses, some that have atypical presentations, the medic…

Macular Degeneration Progression

With a slow-moving disease, like my Macular Degeneration, I find it fascinating to take note of its progression. Call it a morbid scientifi…

The Lighter Side of: Nearsightedness

Who knew that being nearsighted could be ultimately beneficial in the realm of Macular Degeneration? As you may know, I was diagnosed with…

Noticing Symptoms

When it comes to illnesses we have almost no control over, sometimes we ignore our symptoms. When I was diagnosed with Early Onset Macular…

"Stoop Fish"

In the movie Hall Pass , there is a scene where three of the main characters are discussing the attractiveness of one particular tall blond…

Behind Blue Eyes

For Rare Disease Day I wanted to share a bit about my rare disease: Hereditary Angioedema. However, there is another disease that I suffer…

Optometry Appointment

Why is it that even when I have a good appointment it is still not only good ... and I always end up in tears anyways?? Chronic illness of…