Diagnostic years are absolutely exhausting! A diagnostic year is when new symptoms pop up, or a change is made, which begins a cascading e…
Posts
With my eyes, I am finding it too bothersome to drive at night right now. I have astigmatism in both eyes, plus the vision changes from the…
- Get link
- X
- Other Apps
I have been referred to see a specialist who deals specifically with the muscles at the back of the eye. Before I get to see her, I needed…
- Get link
- X
- Other Apps
Oh my eyes. I love my eyes... well, I love the look of my eyes. They have been arguably my best feature. Underneath, however, my eyes ar…
- Get link
- X
- Other Apps
This past year has been a pretty rough year for health. Last September, I was removed off of a medication to explore different potential d…
- Get link
- X
- Other Apps
If you haven't seen the movie Passengers, there are spoilers below. In this movie, the ship that the passengers are traveling on start…
- Get link
- X
- Other Apps
One of the biggest myths of healthcare is a one-size-fits-all approach. We are led to believe that: Bacterial Infection -> …
- Get link
- X
- Other Apps
It has been ingrained in us that much of our identity comes from what we do. What we do for work, what our hobbies are, what we do …
- Get link
- X
- Other Apps
This is a topic that was liked by multiple people to write about - and it's such an important topic: How do you cope with …
- Get link
- X
- Other Apps
Today I did a buccal swab for a genetic test. We are testing the EFEMP1 gene, looking for a mutation that would cause Familial Drusen (also…
- Get link
- X
- Other Apps
When do you feel your best? I know that, for me, this can be a complicated question to answer. The truth is, it depends on the disease an…
- Get link
- X
- Other Apps
I have never spent a ridiculous amount of time on makeup. I keep things fairly simple - but I do try to put a little focus on the eyes. Th…
- Get link
- X
- Other Apps
With a slow-moving disease, like my Macular Degeneration, I find it fascinating to take note of its progression. Call it a morbid scientifi…
- Get link
- X
- Other Apps
I used to try extremely strict diets and believe that if I stuck to it perfectly, with no slips, no cheat days, no junk, that I would becom…
- Get link
- X
- Other Apps
The best thing that you can do for a patient struggling is convey your belief in them. Chronic illness is entirely full of question marks …
- Get link
- X
- Other Apps
Living with never-ending illness is all about balance. I talk quite a bit about balance in many previous posts, but today is about finding…
- Get link
- X
- Other Apps
Today I want to speak about pain. The reason we have various types of pain scales and descriptions for pain is because of the ultimate sub…
- Get link
- X
- Other Apps
Who knew that being nearsighted could be ultimately beneficial in the realm of Macular Degeneration? As you may know, I was diagnosed with…
- Get link
- X
- Other Apps
When it comes to illnesses we have almost no control over, sometimes we ignore our symptoms. When I was diagnosed with Early Onset Macular…
- Get link
- X
- Other Apps
In the movie Hall Pass , there is a scene where three of the main characters are discussing the attractiveness of one particular tall blond…
- Get link
- X
- Other Apps