Posts

Slowing Down

One thing I used to say, and a phrase I hear often from many individuals with chronic illness, is "I don't let my illness slow me …

Head Pain

In July this summer, I woke up one morning with a brutal pain in my head on the right side. I thought it was maybe a migraine, but it didn&…

Growing Up

I believe that one of the most profound elements of growing up is realizing just how ridiculous the beliefs and judgements were that we hel…

Truly Invisible

We, the collective 'we'  of Spoonie-dom, speak a lot about Invisible Disease; the illnesses that cannot be perceived by a cursory g…

Spoonie S.A.F.A.RI

I explain what this is and how it relates in this video .  Essentially, it's the journey that every spoonie undertakes after developi…

General Medical Update

Here is the rundown and update as of Feb 2025.  I am currently 38 years old, turning 39 this August.  Diagnoses & Chronic Conditions: …

Symptom Catalogue

I would say that a good 90% of daily living wiith chronic illness is just unwillingly cataloguing all types of symptoms and sensations from…

Otosclerosis

I got to see the ENT last week!!  It's been a long wait from my first symptoms to seeing this specialized ENT surgeon, so I was very mu…

Puddle Days

Ever wonder why some flare-ups are worse than others, or why something that usually doesn't cause a flare-up suddenly does, out of nowh…

Hearing Aid

It's been two weeks with my new hearing aid for my left ear.  I have moderate to moderately severe hearing loss in my left ear, presume…