Posts

Annoyances

Sometimes it is difficult to always keep in mind that we are all in this together. These days, chronic illness is more than just common, ch…

Dreams Come True

You know, I think that in one way or another, each person's dreams do come true. Often it is not the way in which we expect. Sometimes …

This Is Us

I am currently watching the Superbowl episode of This Is Us. Or rather, I am trying to watch it with blurry misty teary eyes... Amazing s…

Lots of Oops Moments

At the risk of sharing too much information, I wanted to explain what my week has been like - in a comical way. Half of my coping skills a…

The Textbook Answers

One of the greatest challenges in our current approach to medical understanding is that many health professionals expect each illness, dise…

IV Training

Turns out, I may have to learn how to start my own IVs within the coming months. Of course I am nervous... It is kind of an unnerving ide…

Skinny Legs

After an IV treatment of Berinert, it always works even BETTER than sub-q prophylaxis. So not only are my throat and chest wide open - all…