Looks like the new medication will be similar to the Cosentyx. My throat, chest, mouth, and tongue all feel slightly tighter/swollen. It wa…
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Today I had another Cortisone injection into my SI Joint. I wore a dress to this procedure. Nothing fancy, of course, just a basic t-shir…
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Today I saw my Rheumatologist. Before I went in, she had been contemplating increasing my dose of Cosentyx, because the relief I have felt…
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On those information pamphlets you always receive from the pharmacy with any new medication, it always states: "You have been prescri…
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Last night I did my Cosentyx injection... It was a bleeder. Oops. Being on Methotrexate I bruise more easily... and because of genetics …
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Does anyone know if Biologics have been researched specifically on HAE patients? I have documented allergies to four different biologics -…
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When it comes to medications, I am often caught between a rock and a hard place. The biggest complication is that I have several allergies…
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Today was a nice day overall. Yesterday was pretty awful. My migraine started when I woke up around 10am and did not subside until 9pm. Th…
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After watching someone on tv tonight get emotional because of pressure, I wanted to talk about the distinction between crumbling under pre…
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Having done this once before, last Friday, I was much less nervous. Let me rephrase that, I was still very nervous, less petrified. Of co…
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Alright, so today was the day. If you have been following along at all, you'd know that I have been probably uncharacteristically nerv…
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Today is treatment day. Slowly and separately, I did both my Berinert and Methotrexate injections. I find that when I get all of my suppli…
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So - good news! The appointments for the cortisone injection into both of my sacroiliac joints have been scheduled, and they are coming up…
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At my follow-up appointment with my rheumatologist this afternoon, we discussed how the new biologic is working and what my options are. A…
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This week is a big needle week. Yesterday I managed to get two sets of Standing-Order bloodwork done. This is to monitor my liver and othe…
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Sometimes recuperation days mean lying in bed for hours, falling in and out of sleep all day, going back and forth from the bed to the wash…
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You know I have been doing too many injections when I have a glass of water in front of me and I start flicking the glass to get rid of a t…
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Turns out, I may have to learn how to start my own IVs within the coming months. Of course I am nervous... It is kind of an unnerving ide…
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I have been taking Berinert now since September. It has truly improved certain symptoms - I am not going to the ER as much for emergency t…
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