Posts

Stranger Than Fiction

If you have read my last post, you will remember that I have been dealing with a brand new (and life-disrupting) symptom - with a side of t…

Busy Immune System

I have a fair few number of diagnoses.  Most of them have something to do with inflammation and many of them are autoimmune in nature. This…

Ambulatory Wheelchair

I am an ambulatory wheelchair user.  This means that I can only walk short distances, my body tires easily and can give out, and I often ne…

Boosting Immunity

We all hear about these incredible new products or 'super foods' that help to boost immunity. Immunity boosters are the new trend, …

You Are Not Weak

Living with any physical ailment is physically and mentally taxing.  Who knew that living with illness meant taking on so much judgement, a…

Internal Burning

I quite often mention how my insides feel like they are burning - from the inside out. It's like acid pooling in my intestines. Somet…

Having Company

A large part of being chronically ill is knowing your limits. Taking it one step further than that - it is coming to the realization that …

Gutsy Walk 2018 Port-A-Potty

Most of you know that I often take pictures of washrooms. I don't know exactly when it started, but I know that it became a thing whe…

Pain Scale Photo Guideline

I saw this photo posted on FB tonight. I thought I would share it for those of us who: Look like #1, Act like #5, and Feel like #8, On…

I Love Weddings!!

Today was a GREAT day. I got to be a 'plus one' to a wedding today. An outdoor wedding. The weather was ideal. Blue skies, warm …

A Long-Pondered Question

I was recently asked what my thoughts were regarding dating people who are chronically ill (sometimes severely). Q. What would you think a…

Treatments and Triggers - Timing

Once you have lived with chronic illness, certain things quickly become habits. Keeping a journal of foods, activities, medications, appoi…

Sleepless Night - Again

There is a bright side to experiencing a night without sleep. There are a few things going on: I have a major j-pouch flare-up, I have bee…

Remembering Coping Skills

Some friends were having a backyard bonfire tonight and I really wanted to go. It's just laid-back, sit down by the fire all night if I…

Preparations

Preparing for a wedding when you suffer from several chronic illnesses can be complicated. Really complicated. I am going to skip over al…

Tea and Flowers

For me it is always important to indulge in simple luxuries. Herbal tea will not improve my pain. It will not stop my intestines from call…

Finding the Lighthouse

There are a lot of hard truths that come with illness. There's this unexpected forced acceptance of several aspects in life that we ar…

Being a Warrior

Sometimes, being a warrior in regards to chronic illness involves being a champion for your illness - attending conferences, information se…

Starting the Day off Right

I did my Cosentyx injection last night. Within about half an hour after the injection, my throat and chest felt slightly tight, with a lit…

Fatigue

It can be difficult to remember this sometimes: If you are feeling considerably fatigued, your body is fighting something. Maybe it is a …