Feb 28 is Rare Disease Day! What very normal/daily symptom do you deal with that would be considered mind-blowing to someone w…
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This year, for Rare Disease Day , I wanted to do something a little different. This fundraising and awareness campaign is to show how ma…
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It's treatment day!!! Which means a painful needle to the gut. So why am I excited? It is amazing how someone can become accustomed …
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