Posts

Rare Disease Day - Mind-Blowing Daily Symptoms

Feb 28 is Rare Disease Day!  What very normal/daily symptom do you deal with that would be considered mind-blowing to someone w…

Behind Blue Eyes

For Rare Disease Day I wanted to share a bit about my rare disease: Hereditary Angioedema. However, there is another disease that I suffer…

Rare Disease Day 2019

This year, for Rare Disease Day , I wanted to do something a little different. This fundraising and awareness campaign is to show how ma…