Posts

What's So Difficult About Chronic Illness?

I mean, I would like to think that it's common knowledge that living with chronic illness is difficult. But is it just something we kno…

A Malfunctioning Ship

If you haven't seen the movie Passengers, there are spoilers below.  In this movie, the ship that the passengers are traveling on start…

Coping With Loss of Identity

It has been ingrained in us that much of our identity comes from what we do. What we do for work, what our hobbies are, what we do …

Railroaded

What happens when you feel railroaded at an appointment?  With multiple chronic illnesses, some that have atypical presentations, the medic…

Rare Disease Day - Mind-Blowing Daily Symptoms

Feb 28 is Rare Disease Day!  What very normal/daily symptom do you deal with that would be considered mind-blowing to someone w…

Random Questions - What Do You Do After a Bad Appointment to Feel Better?

February Chronic Illness Warrior Question:  What do you do after you've had a bad/tough appointment??  I used to go and buy myself some…

Stranger Than Fiction

If you have read my last post, you will remember that I have been dealing with a brand new (and life-disrupting) symptom - with a side of t…

Perpetually Temporary State

Everything is temporary, we all know that, but when it comes to chronic illness, temporary is etched in our heads every single day - for th…

Liaison

Snowy days call for outdoor yoga practice.  My day today is all about phone calls and filling out forms.  Sometimes being the c…

Reading Back - A Week in The Life...

I have been in the strict habit of keeping a medical journal for years.  I cannot take the credit for it, since I thought it was a ridiculo…

The Lighter Side of: Little Extras

It's not always the big symptoms or diagnoses that really grind someone down. Sometimes it's all those little extra complications …

The Lighter Side of: Uncomfortable Situations

Experiencing pain and suffering - either first-hand or through a family member or friend - is always a really tough situation. Watching a …

Marketplace - Food Sensitivities and Teatoxes

Every once in a while we catch an episode of Marketplace. I love this show - at least the episodes that I have watched. It debunks myths,…

Disease Adaptation

I think we often forget that illness is a living thing. We are seeing this mostly in the area of bacterial infections. We find a way to er…

No Zofran for 2 Weeks

I swear this happens every single time! I alternate between three antibiotics at all times. It helps my Chronic Pouchitis (the chronic inf…

Balancing the Optimism

I think one of the most important things about being someone who is ill is finding a certain balance - especially in order to bring awarene…