I think one of the most misunderstood parts of any of the illnesses that I have is the fatigue that comes with it. Pain is tough enough to…
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A couple of really great friends got married yesterday. Unfortunately health kept me from being there for the entire day... But one thing …
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I had the opportunity to be involved in a beautiful wedding for a couple of really amazing people today. Where envy comes in is that even …
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There are certain things that I always need to prepare for, especially on an exciting and stressful day. 1. Bring doggie bags - for gettin…
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Okay this is the 6th day in a row. This middle-of-the-night nausea and vomiting stuff can stop at any time. It's just so weird! I mean…
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The reason that I loved today so much is because it reminded me that I can feel like absolute sh*t and still have an amazing day. I wok…
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I know it's a day early but I really wanted to share this evening's meal with you. For the main course, I did quartered potatoes a…
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In the summer of 2003, my Colitis had taken a huge turn and was so out of control that it was killing me. By this time, we had tried all …
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I always see those pictures online that say things like: "If you drank from a hose and survived, like this picture" Or …
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A lot of my life consists of waiting. Waiting for tests, waiting to see doctors, waiting for results, waiting for medications.... It's …
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Today I did a youtube video of the song from The Land Before Time, "If We Hold On Together". Like most Disney films, themes incl…
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Motivation tends to strike at odd times. Tonight is one of those nights... And it makes me very glad that I am in a townhouse and no longe…
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I don't have real, true, down days very often. I have down moments, absolutely. Full days only happen now and then, and sometimes there…
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Today has been an amazing day. Started off with an awesome buffet (which means one plate full of food and one plate full of desserts)... Th…
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If I am tired enough, I can basically sleep anywhere. I have been known to fall asleep sitting in waiting room chairs, crowded trains, in…
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This morning I really wanted a sweet, indulgent, breakfast... So I made some vanilla crêpes, filled with maple walnut gelato, strawberry p…
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Before I was diagnosed with Crohn's Disease, when it was just Ulcerative Colitis, before both of my abdominal surgeries, I had to be on…
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Today was a day - as mentioned previously. So the injection happens to be a specific and complicated one. I get it done at a pharmacy but …
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Today is one of those long days that is full of medical stuff. Blood work, injection, and ultrasound.... Over at the injection, there was…
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Sometimes, especially when I hit a particularly bad slump, I actually decide to suffer extra for a few days. Why? Well... If I avoid taking…
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This song has always had such a huge meaning, I think, for many people... Just the idea of pushing through adversity and having those arou…
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This week has been a pretty great week. I had some amazing food, I went and saw some live music, I spent some great time with great people.…
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The meal shown in the picture has salmon and asparagus rolls, salad, fresh avocado, and my tomato flower. This meal takes about 45 minutes…
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When I was in high school, there really wasn't that much of a knowledge base when it came to digestive disorders. "Gluten-free&quo…
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My weekend was incredibly busy (hence the first entry since last week). Got to do a little bit of singing, found some finishing pieces fo…
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Pacing is one of those skills of dealing with chronic illness that I just can't seem to master. I am a little stubborn I guess... So …
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I was listening to spa music this morning and this one tune came on that was one of those abstract songs where there is, seemingly, no dire…
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The first few years that I was sick, we still always used to take a summer trip somewhere. My parents, myself, and a friend of mine would a…
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One of the benefits of having to adapt to change so often, having to switch activities, having to constantly change my perspective, is that…
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One of the assignments of the course that I am in at the pain clinic included writing down all sorts of things that make me feel great. Emo…
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I just found out this week that the AVM in my lung that they saw on a ct scan last month is not necessarily an AVM but another sort of Vasc…
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Sitting in the doctor's office, I head the receptionist say to a patient on the phone: "The doctor wants to see you for results. W…
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This is another previously uploaded video - but it's also an original. The song itself was recorded onto an album back in 2010 and was …
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Knowing every single one of my symptoms is a challenge. Not only are there likely over a hundred symptoms, but some *might* be caused from …
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