Posts

Sleep it Off

I think one of the most misunderstood parts of any of the illnesses that I have is the fatigue that comes with it.  Pain is tough enough to…

Music Monday Edition: Ready To Say I Do

A couple of really great friends got married yesterday.  Unfortunately health kept me from being there for the entire day... But one thing …

Envy

I had the opportunity to be involved in a beautiful wedding for a couple of really amazing people today.  Where envy comes in is that even …

Being Prepared

There are certain things that I always need to prepare for, especially on an exciting and stressful day.  1. Bring doggie bags - for gettin…

Seriously?!

Okay this is the 6th day in a row. This middle-of-the-night nausea and vomiting stuff can stop at any time.  It's just so weird! I mean…

Days Like Today

The reason that I loved today so much is because it reminded me that I can feel like absolute sh*t and still have an amazing day. I wok…

Early Food Friday Edition: Slow Cooker Pork and Brownie-Split Sundae

I know it's a day early but I really wanted to share this evening's meal with you.  For the main course, I did quartered potatoes a…

Throwback Thursday Edition: Birthday Present

In the summer of 2003, my Colitis had taken a huge turn and was so out of control that it was killing me. By this time, we had tried all …

Growing Up

I always see those pictures online that say things like: "If you drank from a hose and survived, like this picture"  Or  …

Waiting For Relief

A lot of my life consists of waiting. Waiting for tests, waiting to see doctors, waiting for results, waiting for medications.... It's …

Music Monday Edition: If We Hold On Together

Today I did a youtube video of the song from The Land Before Time, "If We Hold On Together".  Like most Disney films, themes incl…

Late Nights

Motivation tends to strike at odd times.  Tonight is one of those nights... And it makes me very glad that I am in a townhouse and no longe…

Down Days

I don't have real, true, down days very often. I have down moments, absolutely. Full days only happen now and then, and sometimes there…

Buffet and Mountains

Today has been an amazing day. Started off with an awesome buffet (which means one plate full of food and one plate full of desserts)... Th…

Unlikely Napping Spots

If I am tired enough, I can basically sleep anywhere. I have been known to fall asleep sitting in waiting room chairs, crowded trains, in…

Food Friday Edition: Crêpes

This morning I really wanted a sweet, indulgent, breakfast...  So I made some vanilla crêpes, filled with maple walnut gelato, strawberry p…

Throwback Thursday Edition: Picky Clear Fluid Diet

Before I was diagnosed with Crohn's Disease, when it was just Ulcerative Colitis, before both of my abdominal surgeries, I had to be on…

Moment of Panic

Today was a day - as mentioned previously.  So the injection happens to be a specific and complicated one. I get it done at a pharmacy but …

From Thoughtful to Thoughtless

Today is one of those long days that is full of medical stuff. Blood work, injection, and ultrasound.... Over at the injection, there was…

Renewing Medication Efficacy

Sometimes, especially when I hit a particularly bad slump, I actually decide to suffer extra for a few days. Why? Well... If I avoid taking…

Music Monday Edition: True Colors

This song has always had such a huge meaning, I think, for many people...  Just the idea of pushing through adversity and having those arou…

Surprisingly Late Nights

This week has been a pretty great week. I had some amazing food, I went and saw some live music, I spent some great time with great people.…

Food Friday Edition: Signature Tomato Flower

The meal shown in the picture has salmon and asparagus rolls, salad, fresh avocado, and my tomato flower.  This meal takes about 45 minutes…

Throwback Thursday Edition: An Odd Question

When I was in high school, there really wasn't that much of a knowledge base when it came to digestive disorders. "Gluten-free&quo…

Mix in a Lotta Good

My weekend was incredibly busy (hence the first  entry since last week).  Got to do a little bit of singing, found some finishing pieces fo…

Pacing - I Still Suck At It

Pacing is one of those skills of dealing with chronic illness that I just can't seem to master.  I am a little stubborn I guess...  So …

Abstract Music

I was listening to spa music this morning and this one tune came on that was one of those abstract songs where there is, seemingly, no dire…

Throwback Thursday Edition: Sh*t Happens

The first few years that I was sick, we still always used to take a summer trip somewhere. My parents, myself, and a friend of mine would a…

Loves

One of the benefits of having to adapt to change so often, having to switch activities, having to constantly change my perspective, is that…

Enjoyable Moments

One of the assignments of the course that I am in at the pain clinic included writing down all sorts of things that make me feel great. Emo…

A New Referral

I just found out this week that the AVM in my lung that they saw on a ct scan last month is not necessarily an AVM but another sort of Vasc…

That Awkward Moment...

Sitting in the doctor's office, I head the receptionist say to a patient on the phone: "The doctor wants to see you for results. W…

Music Monday Edition: Stay Strong

This is another previously uploaded video - but it's also an original. The song itself was recorded onto an album back in 2010 and was …

Know Symptoms and Cross Fingers

Knowing every single one of my symptoms is a challenge. Not only are there likely over a hundred symptoms, but some *might* be caused from …