Posts

Year End Receipts

There are some purchases that we make that are directly for my health. Over-the-counter medications like Gravol, Robaxacet, and Motion Medi…

Injection Rate

I have been taking Berinert now since September. It has truly improved certain symptoms - I am not going to the ER as much for emergency t…

Apps that Fix Disease!!

Well this is an interesting topic!! I had a friend send me an advertisement for a new phone app -> one that can improve or even rid one…

One Year Update

On January 27th, 2017, I went in for a surgery. Deciding to have the surgery was complicated. It was something I ended up desperately want…

Bad News = Stress = Worse Health

Since November, things have really been up in the air medically. Not only my health in general becoming worse as far as the Crohn's is …

Willow Bark in Tea

Although some of my allergies are pretty strange and random, I do have allergies that are more common - like to certain antibiotics (Penici…

No Zofran for 2 Weeks

I swear this happens every single time! I alternate between three antibiotics at all times. It helps my Chronic Pouchitis (the chronic inf…

The Problem With "When I Feel Better"

Alright everyone - let's face it - we have ALL said something along these lines: "I can't do that right now. But when I feel …

You Know You Are Chronically Ill When:

- You have the phone numbers, cell phone numbers, and emails of your specialists and their nurses. And you send and receive text messages f…

Bright Sides of Not Sleeping

I have been having some pretty major difficulties sleeping, as I have mentioned several times lately. My choppy sleeping habits are usuall…

Medical Language

I recently wrote a narrative nonfiction piece for a writing competition. There was one moment when I was writing that felt unbearably iron…

Cosentyx

Last night was my final 'build-up' dose of Cosentyx. Now it becomes a sub-cutaneous injection once a month instead of once a week. …

Borrowed Descriptions

I often spend time thinking about how to describe the various ways that I feel. The procedures, the appointments, the contradictory emotion…

Balancing the Optimism

I think one of the most important things about being someone who is ill is finding a certain balance - especially in order to bring awarene…