Posts

What's So Difficult About Chronic Illness?

I mean, I would like to think that it's common knowledge that living with chronic illness is difficult. But is it just something we kno…

Family Feud Perspective

Super interesting moment tonight.  We were watching Family Feud and this question came up: "How many days would you say you spend sick…

RFA #3

My radio-frequency ablation is finished for another year!!  My recovery this year has been much better than the last two years. AND they on…

Dreaming of Pain

I always find it fascinating how my subconscious interprets physical pains.  Whenever I go through a flare-up or a painful procedure, you c…

Not Minding Rainy Weather

I am not minding the milder springtime weather at the moment.  I like the rain in general - I like the smell of rain and the growth it brin…

Fight the Fusion 2020 Update

Last year I started an annual fundraising campaign to help bring awareness to arthritic illnesses like Ankylosing Spondylitis. We had a bun…

Ambulatory Wheelchair

I am an ambulatory wheelchair user.  This means that I can only walk short distances, my body tires easily and can give out, and I often ne…

Braving 'General Admission'

Concerts are often a little intimidating for me since my mobility began to diminish. At first with stairs being so difficult, then using my…

My 'Tells'

I think everyone has their own unique 'tell' or set of 'tells' that signify when that person is really struggling.  Maybe y…

ERCP & Surgery

This is Part 4 of the Gallbladder Saga This part starts on the Friday. The day after the Hyda scan and eating delicious popsicles until mi…

The Lighter Side of: Feeling Everything

Pain is a part of life. Pain is knowledge. Pain informs us when we are doing something wrong, when we are ill, when something inside our bo…

The Lighter Side of: Little Extras

It's not always the big symptoms or diagnoses that really grind someone down. Sometimes it's all those little extra complications …

The Lighter Side of: Migraines

Migraines are one of the worst and most all-encompassing episodes I have ever dealt with. If you catch them early enough, you can avoid the…

The Lighter Side of: Distracting Pain

I have always found it astonishing how pain can distract your mind from everything else around you. It is difficult to follow an entire con…

The Lighter Side of: Low Tolerance

When you are dealing with a lot of inflammation and disease, when you are on many medications, alcohol is not always the best idea. I used…

Playing House

Sometimes I find myself in the middle of such a normal day - like two people with normal and common concerns rather than unfair medical one…

The Lighter Side of: Migraines

Migraines are one of those symptoms where if you do not know whether or not you have had one, then you have not had one. You know if you …

The Lighter Side of: Difficulties Showering

Due to nausea, energy, and pain, showers have become a very rare occurrence. I am able to shower these days, but only about once a couple o…

Balance: Sad and Grateful

Living with never-ending illness is all about balance. I talk quite a bit about balance in many previous posts, but today is about finding…

The Lighter Side of: Using a Cane

Having difficulty with mobility is not exactly a positive thing. With deteriorating back and hips, mobility can take a big hit. I first be…