Posts

Tippy Toe Yoga

Moving into stretches on tippy toes is now part of my standard practice. When I first began trying to find the balance and core strength to…

Ablation Update

Alright - it has now been over a month since I had the nerves in my SI joints ablated to help with some of the pain caused by Ankylosing Sp…

SI Joint Radio Frequency Nerve Ablation

Man, that's a complicated title. Radio Frequency Ablation in the nerve endings around my SI joint and lower spine.... Essentially, the …

Nerve Freezing

Last week I had my first appointment of having my nerves frozen in my SI joints in preparation for nerve ablation.  The preparation for the…

Yoga for Instagram

My activities over the past few years have dwindled to a few. Trust me, I am ecstatic that I can still paddle and practice yoga, but those …

FtF Prize Pack #6

Our 6th prize pack is very much like the 5th prize pack. The bookmarks are a little different, and the painted panel is the bright yellow …

Day 1 of Fight the Fusion Week

WELCOME TO FIGHT THE FUSION 2019!!!! Welcome to Fight the Fusion 2019. This is the FIRST year rolling out this fundraiser. This campaign h…

Being Dramatic

I was diagnosed with Ankylosing Spondylitis in 2013. Around eight months earlier is when I first started experiencing symptoms. My hips we…

Fight the Fusion Week 2019

Did you know that there are over 100 different types of Arthritis and related diseases? Did you know that many of these illnesses are not …

Fight the Fusion

Out of every disease that I suffer from, two of the most terrifying for me are Hereditary Angioedema (HAE) and Ankylosing Spondylitis (AS…

Simple, Basic Yoga

Yoga is everywhere. It has evolved from a practice of specific followers into a full-blown trend - a good trend! There are so many variat…

Wednesday Night Yoga

After my recent Cortisone injections, my SI Joints are feeling a little less painful. The relief is not jaw-dropping, but it is worth the …

Cortisone

Okay so I have to admit that my emotional response to the cortisone injections have not been as severe this time around.... But holy hell …

Cimzia vs Cosentyx

Looks like the new medication will be similar to the Cosentyx. My throat, chest, mouth, and tongue all feel slightly tighter/swollen. It wa…

Shopping in a Wheelchair

Last night we got to go shopping!!! Rj had to essentially replace his dress shirr wardrobe, so we went to the largest outlet mall just nor…

Surprise Visitor

Today was a nice day overall. Yesterday was pretty awful. My migraine started when I woke up around 10am and did not subside until 9pm. Th…

My First Cortisone Injection

Alright, so today was the day. If you have been following along at all, you'd know that I have been probably uncharacteristically nerv…