Posts

Waking up STRESSED

Ever wake up feeling utterly stressed out? It's like everything you have on a to-do list all-of-a-sudden becomes overwhelming. Then, e…

Covering Your Butt

Dealing with health issues includes many frustrating situations. You are attending appointments constantly, writing and submitting paperwo…

The Jellyfish Float

One of the most relaxing activities is the jellyfish float. It is also known as the 'dead man's float' or the 'survival flo…

New Material

Rj asked me today how I somehow find new things to write about nearly each day. How do I come up with new material every single day? Well…

Pride and Accomplishments

It is amazing how different 'levels' of accomplishments garner a sense of pride at different moments in a person's life. When …

Good Food

Good food is a relative term. Good food has a different definition for everyone. Of course, food like deep fried anything or soda pops can…

Dare to Dream

I had very strange dreams last night. Crazy dreams. One was kinda good, one was weird and bad but not anywhere near night terror kind of ba…

Perception of Seriousness

I was having a lengthy discussion with someone today about the entire topic of chronic illness. This is an umbrella term for thousands of …

Sub-Q Injection Woes

Today is treatment day. Slowly and separately, I did both my Berinert and Methotrexate injections. I find that when I get all of my suppli…

Keep a Routine

I grew up knowing and believing that challenging oneself is the best way to promote growth. Challenge the physical, mental, and emotional b…

Sleep

Sleep has always been a bit of an issue for me since I first became ill. At first it was pain and bathroom breaks. I would be up several t…

Best Life Decisions

We all make decision after decision after decision every single day. Most are menial, but others are monumental. I want to celebrate some …

Receptacle Analysis

If you have ever wondered what the best receptacles are to puke in, you have come to the right place!! 😉🤢 We all …

Explaining Ourselves

One of the most impactful health quotes I have seen within the last few years is this: "The worst thing you can do to a person with a…

Needles Needles Needles

This week is a big needle week. Yesterday I managed to get two sets of Standing-Order bloodwork done. This is to monitor my liver and othe…

Biologics Rage

Biologics tend to cause a lot of issues in the body. They are huge medications - heavy-hitters - so they take their toll. This includes the…

Doxycycline

Full disclosure - Doxycycline is kicking my ass this round. I don't know why it is affecting me this badly this time around... but I u…

Blessings Disguised

Haven't we all had moments in our lives that we thought were completely unfair, only to realize later in life that those experiences we…