Sometimes I just absolutely do NOT understand my body's sleep habits. Put me in an MRI machine, with whirring, clanging, banging, and …
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I was recently asked what my thoughts were regarding dating people who are chronically ill (sometimes severely). Q. What would you think a…
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One of the tougher things about writing, in general, is that everything in writing seems black and white. You have to possess some literary…
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Oh man. Poor Rj had an awful sleep with a fever and a bad cold. Dex played a little too much the other day and wound up vomiting around 4…
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Once you have lived with chronic illness, certain things quickly become habits. Keeping a journal of foods, activities, medications, appoi…
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There is a bright side to experiencing a night without sleep. There are a few things going on: I have a major j-pouch flare-up, I have bee…
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There is something about Prednisone that can be difficult to understand. The basic understanding is that it helps inflammation and it come…
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These days I have been struggling to eat a healthy amount of calories, due to Crohn's Disease and Chronic Pouchitis (Colitis with no co…
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Some friends were having a backyard bonfire tonight and I really wanted to go. It's just laid-back, sit down by the fire all night if I…
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I was about 16 years old, before surgery, suffering from Ulcerative Colitis and Recurrent Pancreatitis primarily. I had already been throug…
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I have always joked around that no woman ages past the age of 29. That we just have several birthdays celebrating being 29 ;). Lately I ha…
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Preparing for a wedding when you suffer from several chronic illnesses can be complicated. Really complicated. I am going to skip over al…
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I have been mulling over whether or not to share stories like the one I am about to share. Do I want this information out on the internet?…
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We all know that any medical condition can get out of control in a hurry if it is not taken care of. A simple cold can turn into pneumonia…
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For me it is always important to indulge in simple luxuries. Herbal tea will not improve my pain. It will not stop my intestines from call…
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There are a lot of hard truths that come with illness. There's this unexpected forced acceptance of several aspects in life that we ar…
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Sometimes, being a warrior in regards to chronic illness involves being a champion for your illness - attending conferences, information se…
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I did my Cosentyx injection last night. Within about half an hour after the injection, my throat and chest felt slightly tight, with a lit…
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It can be difficult to remember this sometimes: If you are feeling considerably fatigued, your body is fighting something. Maybe it is a …
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Does anyone know if Biologics have been researched specifically on HAE patients? I have documented allergies to four different biologics -…
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When it comes to medications, I am often caught between a rock and a hard place. The biggest complication is that I have several allergies…
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My dog - who is not a service dog - has been my personal service dog since I got him. He is just a regular rescue pup who is amazing and s…
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Today was a nice day overall. Yesterday was pretty awful. My migraine started when I woke up around 10am and did not subside until 9pm. Th…
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A friend came by tonight just to visit, and she is growing a little miracle!! Love love love it. One of the best moments is being able to…
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So RJ and I had this gift voucher for the restaurant Dark Table, which expires May 12th, so we decided to go last night, despite how weak I…
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In the interest of trying to save a little money here and there, I recently joined an online auction site. These auctions sell everything f…
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Okay so I am not a 'gamer'. We had an original Nintendo when I was around 4 or 5 years old, so I played Duck Hunt and Mario Bros. W…
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