Posts

Understanding Sleep

Sometimes I just absolutely do NOT understand my body's sleep habits. Put me in an MRI machine, with whirring, clanging, banging, and …

A Long-Pondered Question

I was recently asked what my thoughts were regarding dating people who are chronically ill (sometimes severely). Q. What would you think a…

Writing

One of the tougher things about writing, in general, is that everything in writing seems black and white. You have to possess some literary…

An Ill Home

Oh man. Poor Rj had an awful sleep with a fever and a bad cold. Dex played a little too much the other day and wound up vomiting around 4…

Treatments and Triggers - Timing

Once you have lived with chronic illness, certain things quickly become habits. Keeping a journal of foods, activities, medications, appoi…

Sleepless Night - Again

There is a bright side to experiencing a night without sleep. There are a few things going on: I have a major j-pouch flare-up, I have bee…

Prednisone Truth Talk

There is something about Prednisone that can be difficult to understand. The basic understanding is that it helps inflammation and it come…

My Intestines Can be Jerks

These days I have been struggling to eat a healthy amount of calories, due to Crohn's Disease and Chronic Pouchitis (Colitis with no co…

Remembering Coping Skills

Some friends were having a backyard bonfire tonight and I really wanted to go. It's just laid-back, sit down by the fire all night if I…

Throwback - Drug-Store Fiasco

I was about 16 years old, before surgery, suffering from Ulcerative Colitis and Recurrent Pancreatitis primarily. I had already been throug…

Thirties

I have always joked around that no woman ages past the age of 29. That we just have several birthdays celebrating being 29 ;). Lately I ha…

Preparations

Preparing for a wedding when you suffer from several chronic illnesses can be complicated. Really complicated. I am going to skip over al…

Embarrassing Moments

I have been mulling over whether or not to share stories like the one I am about to share. Do I want this information out on the internet?…

Out of Control

We all know that any medical condition can get out of control in a hurry if it is not taken care of. A simple cold can turn into pneumonia…

Tea and Flowers

For me it is always important to indulge in simple luxuries. Herbal tea will not improve my pain. It will not stop my intestines from call…

Finding the Lighthouse

There are a lot of hard truths that come with illness. There's this unexpected forced acceptance of several aspects in life that we ar…

Being a Warrior

Sometimes, being a warrior in regards to chronic illness involves being a champion for your illness - attending conferences, information se…

Starting the Day off Right

I did my Cosentyx injection last night. Within about half an hour after the injection, my throat and chest felt slightly tight, with a lit…

Fatigue

It can be difficult to remember this sometimes: If you are feeling considerably fatigued, your body is fighting something. Maybe it is a …

Biologics and HAE

Does anyone know if Biologics have been researched specifically on HAE patients? I have documented allergies to four different biologics -…

"Obviously Not That Serious"

When it comes to medications, I am often caught between a rock and a hard place. The biggest complication is that I have several allergies…

Service Pup

My dog - who is not a service dog - has been my personal service dog since I got him. He is just a regular rescue pup who is amazing and s…

Surprise Visitor

Today was a nice day overall. Yesterday was pretty awful. My migraine started when I woke up around 10am and did not subside until 9pm. Th…

Little Miracles

A friend came by tonight just to visit, and she is growing a little miracle!! Love love love it. One of the best moments is being able to…

Dark Table

So RJ and I had this gift voucher for the restaurant Dark Table, which expires May 12th, so we decided to go last night, despite how weak I…

Unexpected Gift

In the interest of trying to save a little money here and there, I recently joined an online auction site. These auctions sell everything f…

Arcade

Okay so I am not a 'gamer'. We had an original Nintendo when I was around 4 or 5 years old, so I played Duck Hunt and Mario Bros. W…