Posts

Ambulatory Wheelchair

I am an ambulatory wheelchair user.  This means that I can only walk short distances, my body tires easily and can give out, and I often ne…

Skipping Out on Bloodwork

My energy has been pretty depleted as of late, so I am able to do less and less during the day before my body decides it's enough.  Som…

Good Symptoms, Bad Symptoms

It is really sad when even 'better symptoms' have to be met with suspicion. With many chronic illnesses come many chronic symptoms…

The Lighter Side of: Exhaustion

For whatever reason, my body has decided to take a little sabbatical. It is not as though I feel particularly awful, just tired. Really ti…

The Lighter Side of: Nostalgia

While 'living in the past' can be quite unhealthy, even harmful, nostalgia is a powerful feeling, and something that powerful can b…

The Lighter Side of: Being Too Tired

Okay, sure, the vast majority of the time, being so tired that you are ready to fall asleep at any moment of the day can be pretty inconven…

The Lighter Side of: Part-Time Wheelchair Use

For the majority of the time, my illnesses are very invisible. Even when I am using my cane, most people simply assume that I have been inj…

The Lighter Side of: Difficulties Showering

Due to nausea, energy, and pain, showers have become a very rare occurrence. I am able to shower these days, but only about once a couple o…

The Lighter Side of: Sleep Issues

Sleep issues are normal for anyone with chronic illness. They can range from too much sleep, not enough sleep, insomnia, nightmares, halluc…

The Lighter Side of: Using a Cane

Having difficulty with mobility is not exactly a positive thing. With deteriorating back and hips, mobility can take a big hit. I first be…

The Problem with Honesty

Honesty is often seen as a rare characteristic. People are really well-known for bending, stretching, or manipulating the truth. If people…

Time Management

It is kind of shocking how different life can become in regards to time management when at different stages of life. When I was in Univers…

Fatigue

Fatigue is most often a symptom or a by-product of an illness. It is not well understood, it is not well-described, and is often serious en…

Random Feeling

There is a type of restlessness that doesn't really have a name. It is in between several different states. When you are too exhauste…

Asking for Help

Things happen. Things happen when you are ready for them, but most of the time things happen unexpectedly - when you are not prepared. It…

Taking Care of Someone Else

Sometimes, the best way to distract yourself from your own pain is to be taking care of someone else. Not only does it offer a loving distr…

Recuperation Time Frustration

Yesterday when my hubby and I had to go out and get a couple of things, I felt uncontrollably frustrated. It felt as though I was on Predn…

Sweet Sweet Showers

Most of you already know that I haven't really been able to enjoy a real shower in a couple of years. The movement and (mostly) the sta…

Finally some Sleep

Last night I got a few hours of RESTFUL sleep!!!! I am still lying in bed (nearly 3:30 in the afternoon), and I still feel grossly fatigue…

Getting Moving After Christmas

After the festivities are over, how long do you leave your lights up? Where do you take excessive leftovers? How long do you keep your tree…