Posts

Random Questions - What's Your Go-To Crash Day Snack

Crash-days are a part of every day life in people with any variation of chronic illness.  Actually, no, that's not right. C…

Struggling with Isolation

Self-isolation and social distancing is relatively simple in its concept, and difficult in its execution.  As I have mentioned on here befo…

Accessible Homes

Watching Love it or List it today on HGTV, a couple was deciding whether or not to leave their current bungalow. The husband has Muscular …

You Are Not Weak

Living with any physical ailment is physically and mentally taxing.  Who knew that living with illness meant taking on so much judgement, a…

Reading Back - A Week in The Life...

I have been in the strict habit of keeping a medical journal for years.  I cannot take the credit for it, since I thought it was a ridiculo…

What it Means to Have an Invisible Illness

It is often difficult to tell what anyone else around us is thinking, feeling, or experiencing.  A fake smile can hide a life of loss and d…

Braving 'General Admission'

Concerts are often a little intimidating for me since my mobility began to diminish. At first with stairs being so difficult, then using my…

Advice on Communication

I have been having some difficulty with basic communication while I am being pushed in my wheelchair.  I am finding that regular and natura…

Creepy Parking Lots & Bad Afternoons

I had a terrible time sleeping last night. Not sure why. Tried everything - again - to no avail. I don't think my body let me sleep unt…

The Lighter Side of: Uncomfortable Situations

Experiencing pain and suffering - either first-hand or through a family member or friend - is always a really tough situation. Watching a …

The Lighter Side of: Part-Time Wheelchair Use

For the majority of the time, my illnesses are very invisible. Even when I am using my cane, most people simply assume that I have been inj…

The Lighter Side of: Reliance

I think one of the toughest parts of any illness or disability is having to rely on others. The loss of independence is a huge hit. It is n…

The Lighter Side of: Free Time

The idea of free time is a complex one. People who work several jobs or do nothing but work are often desperate for some free time. We h…

Sacrifice (Part 2): Medications

This is part 2 of a multiple-part series addressing some misconceptions about people who are chronically ill or who have specific disabilit…

Sacrifice (Part 1): Lung Issues

Over the next several posts, I want to slowly address some of the misconceptions of people who have some kind of disability. Many people s…

The Problem with Honesty

Honesty is often seen as a rare characteristic. People are really well-known for bending, stretching, or manipulating the truth. If people…

Dreams and Nightmares

I wonder about the dreams and nightmares of anyone who is ill, scarred, disabled. Do you dream about yourself in your current situation? …

Trapped

Chronic illness can sometimes make you feel trapped. Being ill is surprisingly accompanied by constant guilt. All the time. Especially if …

Describing What You Do

For anyone who has ever been in between jobs, struggling, too ill to work, or having to work jobs that can be deemed 'embarrassing'…

Why is it Hard to Say "Disabled"?

It is such a strange taboo, this entire connotation that accompanies the word: " Disabled ". Merriam-Webster includes several …