There is a particular fear that comes with chronic illness that I think is underrated. Every single new symptom, every single new severity…
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I crashed today. I had an issue overnight, then after picking up my medication (with the aid of my husband and my wheelchair), I managed t…
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For Rare Disease Day I wanted to share a bit about my rare disease: Hereditary Angioedema. However, there is another disease that I suffer…
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Disease and illness seems to be ravaging our world. Although there seems to be an uptick in autoimmune diseases, inflammatory conditions, m…
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This year, for Rare Disease Day , I wanted to do something a little different. This fundraising and awareness campaign is to show how ma…
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Anyone who has ever suffered with inflammation of some kind has heard of Prednisone. It is a corticosteroid that helps to reduce inflammat…
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With the perpetual ice and snow, the polar vortex, the cold snap, many people have resorted to concealing themselves indoors. I mean, the …
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In my latest 'Ask Me Anything' post, I had shared my most recent blog about deciding not to have children. In that post it was cle…
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The choice to raise children or not to raise children is an intimately personal decision. I wanted to take a moment to speak about why and…
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For anyone who has ever been in between jobs, struggling, too ill to work, or having to work jobs that can be deemed 'embarrassing'…
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I think we all dream a little bit of how different things might be if we had made certain decisions over others. I don't feel any regr…
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So it has become pretty clear that prednisone/cortisone has been the main culprit in the consistent migraines. After each set of cortisone…
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Sometimes, the best way to distract yourself from your own pain is to be taking care of someone else. Not only does it offer a loving distr…
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I don't believe that it is any secret that I have had a difficult time having showers. In 2015 I had one of my most unhealthy years an…
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While watching shows like Chicago Med and Grey's Anatomy, we always see the guilt and the second-guessing that occurs when a nurse or d…
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Every illness seems to have its own set of dietary restrictions or requirements. Luckily for me, having Macular Degeneration means that I s…
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Since I was 14, when I was diagnosed first with Ulcerative Colitis, I have had a ton of sleep issues. Back and forth between two extremes,…
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Well, hubby and I decided to adopt a second puppy. The driving force behind it was so that our older pup has a little brother to (eventuall…
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There have been some commercials on tv recently about Hyperhydrosis. Essentially it is just excessive sweating. There is not necessarily …
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Sometimes I have to allow a situation to simply carry me into Forced Relaxation. Forced Rest. Rj was going out of town and picking up some…
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Aaaah Prednisone. The medication that saves lives. The medication with over 150 different common side effects. Prednisone and similar co…
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If you are thinking about going to see a doctor about a specific pain or new symptom, it is best to be prepared to answer some common quest…
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I have had more than my fair share of doctors appointments, trips to Urgent Care and the Emergency Room, and diagnostic tests because of so…
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Quick tip: If you have a UTI, a bladder infection or bladder inflammation - anything bladder related really: Don't watch horror films…
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