Posts

Rollercoaster

The rollercoaster ride of health issues is not the kind I usually like to ride. Yesterday was a good news - bad news - good news - bad new…

Defining Who We Are

"All of a sudden you find yourself not defined by what you do but rather by what you don't do". The idea that instead of fo…

Outhouses

On my great search for any toilet on any road trip - planned or unplanned - I almost always end up at one of these: A roadside turnout out…

Uploading Another's Experience

Did you know you can look like you are having the best time of your life, Then shed your happy demeanor the second you step into a bathroo…

No Pain No Gain?

Taking medication and following doctor's orders is a lot easier when you can really feel or notice beneficial effects. This also works…

What I Do For Me

I think there is a difference between what I do for me and what I do for my illness . In some ways, there is no difference, like when I t…

When Health and Music Clash

So I have to do at least 3 sub-cutaneous injections into my abdomen every week. This requires injecting a medication directly under the sk…

Disease Adaptation

I think we often forget that illness is a living thing. We are seeing this mostly in the area of bacterial infections. We find a way to er…

Long Term Relationship

Chronic illness is a forced, unexpected, life-long commitment/long term relationship to a stranger. Suddenly ALL of your needs and functio…

Irony in Health

There are many decisions being made lately that scream irony... and it often has to do with expectations and societal movements. So, let&#…

Hiding Pain

In this post are two pictures. There is one fundamental difference between these two photos, and I am not sure how clear it is. The momen…

Expected Crash and Why It Was Worth It

Oh man. Yesterday was the worst day of an expected crash. On Sunday I got to sing on an outdoor stage for the popup shops and food trucks…

Delayed Response

Whenever I push my limits - in any way, for any activity, the next day is bad, but it's not the worst. Just like when you workout at t…

The Power of Thought and Suggestion

It is now widely believed that many illnesses - including chronic inflammatory conditions - could even be cured from just believing that yo…

15 Ways to Enjoy Your Life

Don't let anyone fool you - no one is 100% happy. In my opinion, once you reach around the 75% mark, you begin to get so terrified of …

Singing

Well.. I am not able to do much, but every now and then, every few months, I get an opportunity to sing. As long as I have people availab…

My Bad Moment = Another's Great Moment

I am having a day today. One of those days where your thoughts have holes in them for no reason. I went to pick up Rj from the airport t…

Late Night Dessert

I got preoccupied today and kinda forgot to eat... By 10pm I had only had Boost. So I had some chicken with rice, but now I am craving so…

'Better' is Relative

When I say that "I feel better", like today, it does not mean that I feel good . All it means is that I am not huddled in the fe…

Diet

There is a common misconception about diet and chronic illness. Many people, even with chronic illnesses of the digestive system, can ofte…

Benefits Worth the Risk

On those information pamphlets you always receive from the pharmacy with any new medication, it always states: "You have been prescri…

Food Parties

If you are friends of mine, you'll already know what a food party is. Basically it is a house party for grown ups, where I cook a ton …

Rj Withdrawal

I swear, every time that Rj has to go away for work, the first day or two is always hell. My insides feel like they are burning me from the…

Internal Burning

I quite often mention how my insides feel like they are burning - from the inside out. It's like acid pooling in my intestines. Somet…

Having Company

A large part of being chronically ill is knowing your limits. Taking it one step further than that - it is coming to the realization that …

Bruising - Oops

Last night I did my Cosentyx injection... It was a bleeder. Oops. Being on Methotrexate I bruise more easily... and because of genetics …

Boredom

Okay we all know how boredom can feel - not sure what to do, but when someone suggests something, nothing feels interesting. You go over al…

Gutsy Walk 2018 Port-A-Potty

Most of you know that I often take pictures of washrooms. I don't know exactly when it started, but I know that it became a thing whe…

Pain Scale Photo Guideline

I saw this photo posted on FB tonight. I thought I would share it for those of us who: Look like #1, Act like #5, and Feel like #8, On…

The Runaround

We all become frustrated when we get the runaround. Whether it is with simple sales representatives for a company from whom we would like t…

Covering Your Butt

Dealing with health issues includes many frustrating situations. You are attending appointments constantly, writing and submitting paperwo…