Posts

Hermit New Years Eve

Busy weeks make for longer recuperating times. The Holiday season is already busy for most people, so it's not unusual to require LOAD…

Spider Angioma

Looks like I have a brand new Spider Angioma. Several years ago I developed one on my nose. The most obvious spot. While Spider Angiomas…

Sweet Sweet Showers

Most of you already know that I haven't really been able to enjoy a real shower in a couple of years. The movement and (mostly) the sta…

Finally some Sleep

Last night I got a few hours of RESTFUL sleep!!!! I am still lying in bed (nearly 3:30 in the afternoon), and I still feel grossly fatigue…

Arguments

A few years ago, I was suffering with some severe back and flank pain that no one could figure out or pin down. I was referred to a specia…

Why is it Hard to Say "Disabled"?

It is such a strange taboo, this entire connotation that accompanies the word: " Disabled ". Merriam-Webster includes several …

Fearing the Unknown

Here we are - always barreling forward. Time may heal pains and grief and various other difficulties, but what happens when someone feels …

Restorative Yoga

Restorative Yoga is one of my favourite practices - and often one of the only practices I can physically manage. The Lotus Pose - pictured…

New Years Resolutions

New Years Resolutions I don't know about any of you, but I still enjoy writing a list of resolutions. Well, they're not exactly r…

Getting Moving After Christmas

After the festivities are over, how long do you leave your lights up? Where do you take excessive leftovers? How long do you keep your tree…

Merry Christmas

My Christmas may not be illness-free. My Christmases have not been illness-free since 1999. However, that doesn't automatically mean …

Answered Questions

My recent 'Ask Me Anything' post got a bit of engagement. My post: "Ask me anything about Hereditary Angioedema". The …

Mind Bender

I am tired. Exhausted. Fatigued. I am not sleepy. Should I try to sleep more? Should I admit defeat and get up and do something fun unti…

Muggle Illness

I saw a comment today that I thought was brilliant. The comment referred to common illnesses - like colds, flus, strep throat, pulled or s…

Slow Down

Sometimes I wonder if the rise in chronic illness has something to do with Mother Nature trying to force our society to slow down. It seem…

Good and Bad for Health

Having chronic illness often means accepting circumstances that can be brutal, but can also be essentially beyond your control. One of the…

Battery Life

Imagine a healthy person in his/her early twenties. Working, playing, learning. Burning the candle at both ends with no noticeable effect…

Another Partially Sleepless Night

Here I am, lying in bed, essentially staring at the ceiling. I fell asleep with little to no issue, but woke up just before 3am. This ofte…

Can Advanced AMD be Reversed

Age-Related Macular Degeneration is widely considered to be an illness of the elderly. The 'Age-Related' description essentially me…

Ask Me Anything - AS Diet

During my latest 'Ask Me Anything' post, someone asked me what the best diet for Ankylosing Spondylitis would be. This is a compli…

5 Ways to Cope with Pain

In my latest 'Ask Me Anything' post, I was asked to write about my best and most favourite ways to cope with mind-boggling pain wi…

Especially Grateful

This year, Christmas will not be the biggest event of the year. What an exciting year it has been. Weddings allllllllll year round (includ…

What's My Superpower?

What's my superpower? Anyone who endures high pain on a consistent basis will have this superpower: I can sit in a crowded Emergency …

Oversleeping

You know you have pushed too hard when you sleep through your medication alarm and sleep hard until 3pm. Today is an essential rest day.…

A Day full of Christmas Everything and Little Women

*Spoiler Alert* After spending part of the afternoon singing Christmas carols over Live-Streaming social media, I needed to rest for quite…

Sleep Paralysis and Hallucinations

Up at 4am. Tomorrow I am doing my annual live-streaming concert. I am super excited about it but also pretty nervous. I currently have so…

Mistakes She Made with her Own Ulcerative Colitis

Mistakes made about Inflammatory Bowel Disease. This is an article written by a brave young woman who was diagnosed with Ulcerative Colit…

Christmas Concert Fundraiser

It's that time of year for my annual live-streaming concert!! Make sure to head to My Musical Life for all the details! THIS SATURDA…

General Malaise

Okay whatever this bug is (or was) is kicking my butt!! My sleep cycle is all off, when I go to lie down I can't seem to fall asleep, …

The Elephant Man

The Elephant Man was on tv the other day. I had never seen it, so I recorded it on our PVR. It is a black and white 1980 film, starring A…

Mamma Mia 2

**Spoiler Alert* OMG there is a woman in a wheelchair singing and spinning and dancing with her upper body in one of the scenes in this mo…

A Second Dose of Cimzia

Rheumatologist appointment today. It wasn't an amazing appointment, but not exactly bad either. I explained that my first dose of Cim…

Peddling Products

Have you ever received a random message that you instinctively knew was going to end up pissing you off? The other day I was on Instagram…

Fun..? Crohn's Activity/Experiment

Anyone with Ulcerative Colitis, Crohn's Disease (or any Inflammatory Bowel Disease or disease of the intestines) will have a pretty goo…

Dental Appointments

Today I had a pretty brutal dental appointment. Luckily for me, I have an incredible hygienist who is not only gentle with my teeth, but w…

Terrified of Needles

I used to be absolutely terrified of needles. When I was young, if we even drove past the place where I received vaccinations as a child…

Medication for HAE

We got married this year!! September 22, 2018. Beautifully perfect day, with no real problems other than the health complications we expect…

An Extra Flu

Let's face it: Crohn's Disease is essentially a flu that lasts forever (a broad description). You know... constantly nauseated, c…

This or That

Rest. The rest required when suffering with chronic illness can often be staggering. Shocking. Hindering. Necessary. If you also happen …

Needles and Christmas Shopping

This year, because of getting a wheelchair as well as because of the postal strike, I was really looking forward to going physically shopp…