Busy weeks make for longer recuperating times. The Holiday season is already busy for most people, so it's not unusual to require LOAD…
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Looks like I have a brand new Spider Angioma. Several years ago I developed one on my nose. The most obvious spot. While Spider Angiomas…
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Most of you already know that I haven't really been able to enjoy a real shower in a couple of years. The movement and (mostly) the sta…
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Last night I got a few hours of RESTFUL sleep!!!! I am still lying in bed (nearly 3:30 in the afternoon), and I still feel grossly fatigue…
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A few years ago, I was suffering with some severe back and flank pain that no one could figure out or pin down. I was referred to a specia…
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It is such a strange taboo, this entire connotation that accompanies the word: " Disabled ". Merriam-Webster includes several …
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Here we are - always barreling forward. Time may heal pains and grief and various other difficulties, but what happens when someone feels …
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Restorative Yoga is one of my favourite practices - and often one of the only practices I can physically manage. The Lotus Pose - pictured…
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New Years Resolutions I don't know about any of you, but I still enjoy writing a list of resolutions. Well, they're not exactly r…
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After the festivities are over, how long do you leave your lights up? Where do you take excessive leftovers? How long do you keep your tree…
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My Christmas may not be illness-free. My Christmases have not been illness-free since 1999. However, that doesn't automatically mean …
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My recent 'Ask Me Anything' post got a bit of engagement. My post: "Ask me anything about Hereditary Angioedema". The …
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I am tired. Exhausted. Fatigued. I am not sleepy. Should I try to sleep more? Should I admit defeat and get up and do something fun unti…
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I saw a comment today that I thought was brilliant. The comment referred to common illnesses - like colds, flus, strep throat, pulled or s…
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Sometimes I wonder if the rise in chronic illness has something to do with Mother Nature trying to force our society to slow down. It seem…
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Having chronic illness often means accepting circumstances that can be brutal, but can also be essentially beyond your control. One of the…
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Imagine a healthy person in his/her early twenties. Working, playing, learning. Burning the candle at both ends with no noticeable effect…
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Here I am, lying in bed, essentially staring at the ceiling. I fell asleep with little to no issue, but woke up just before 3am. This ofte…
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Age-Related Macular Degeneration is widely considered to be an illness of the elderly. The 'Age-Related' description essentially me…
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During my latest 'Ask Me Anything' post, someone asked me what the best diet for Ankylosing Spondylitis would be. This is a compli…
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In my latest 'Ask Me Anything' post, I was asked to write about my best and most favourite ways to cope with mind-boggling pain wi…
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This year, Christmas will not be the biggest event of the year. What an exciting year it has been. Weddings allllllllll year round (includ…
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What's my superpower? Anyone who endures high pain on a consistent basis will have this superpower: I can sit in a crowded Emergency …
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You know you have pushed too hard when you sleep through your medication alarm and sleep hard until 3pm. Today is an essential rest day.…
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*Spoiler Alert* After spending part of the afternoon singing Christmas carols over Live-Streaming social media, I needed to rest for quite…
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Up at 4am. Tomorrow I am doing my annual live-streaming concert. I am super excited about it but also pretty nervous. I currently have so…
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Mistakes made about Inflammatory Bowel Disease. This is an article written by a brave young woman who was diagnosed with Ulcerative Colit…
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It's that time of year for my annual live-streaming concert!! Make sure to head to My Musical Life for all the details! THIS SATURDA…
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Okay whatever this bug is (or was) is kicking my butt!! My sleep cycle is all off, when I go to lie down I can't seem to fall asleep, …
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The Elephant Man was on tv the other day. I had never seen it, so I recorded it on our PVR. It is a black and white 1980 film, starring A…
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**Spoiler Alert* OMG there is a woman in a wheelchair singing and spinning and dancing with her upper body in one of the scenes in this mo…
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Rheumatologist appointment today. It wasn't an amazing appointment, but not exactly bad either. I explained that my first dose of Cim…
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Have you ever received a random message that you instinctively knew was going to end up pissing you off? The other day I was on Instagram…
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Anyone with Ulcerative Colitis, Crohn's Disease (or any Inflammatory Bowel Disease or disease of the intestines) will have a pretty goo…
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Today I had a pretty brutal dental appointment. Luckily for me, I have an incredible hygienist who is not only gentle with my teeth, but w…
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I used to be absolutely terrified of needles. When I was young, if we even drove past the place where I received vaccinations as a child…
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We got married this year!! September 22, 2018. Beautifully perfect day, with no real problems other than the health complications we expect…
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Let's face it: Crohn's Disease is essentially a flu that lasts forever (a broad description). You know... constantly nauseated, c…
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Rest. The rest required when suffering with chronic illness can often be staggering. Shocking. Hindering. Necessary. If you also happen …
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This year, because of getting a wheelchair as well as because of the postal strike, I was really looking forward to going physically shopp…
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